Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.
So Superman has been receiving Christmas cards. They only check the mail once a week. But yesterday he received a present from someone and it was a special gift. Thank you so much you know who you are. Superman loves it. I will post more pictures later with his gift when he is more awake. They had to up his seizure medications again and now all he wants to do is sleep. Thanks to everyone who has sent cards also thanks for all the prayers and well wishes. He is continuing to make progress.
So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!
Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.
We had a surprise party for Jeff it was his 50th Birthday. He received a few joke gifts. One was a cane filled with different things on Superman posed with the glasses from the cane.
At Dylan’s school they started this program to earn tickets for good behavior. So, Dylan earned tickets to go Christmas shopping and this is the gift he got me. This is the second year they have done this. It is awesome idea for the children. He got the queen part right. Haha just joking.
The bus is coming to the house tomorrow to train me on how to put Dylan on the bus. I don’t think I have a problem putting him on the bus. I have a problem with the bus aids who just stand there and do nothing. They should already be trained to handle special needs children since they are working on a bus that transports special needs children.