Snapchat fun and cute pictures!

Some cute pictures of Superman and his niece Delilah! Dylan really doesn’t like his picture taken often so, you have to do it when he is in a good mood or feeling good. Which is not that often here lately. Please him in your prayers. Thanks!

Superman!

This, guy right here is still not walking yet. This recovery from necrotizing pneumonia is taking way to long. I thought he would be walking by now. It has been six months now altogether. Therapy is going okay but it takes 20 minutes for him to get warmed up. I am so mad at the doctors at John Hopkins for taking so long to diagnose him.

Superman pictures!

We just got done cleaning Dylan up! So, we decided to take a few pictures of him. But he was not to happy at first then he started smiling.

Uncle Dylan!

Dylan is starting to feel better so, he was snuggling with his niece last night. He rolled over closer to her. The cat also had to get in one of the pictures too. We finally got air mattress from my moms house. Thanks so much for letting us use it sis. It is better then trying to take Dylan upstairs ever night. He still refuses to do his physical therapy. He has an appointment at cypress creek Saturday, hopefully he does work then.

Haircut!

Superman got his haircut. It took three of us to do it but we got done. Don’t he look so handsome. He is still not back to himself yet. He is still working hard towards his goals. Again thanks for all the wonderful cards and prayers. He will be starting the Epidiolex this week.

Cards!!

Superman would like to thank everyone for all the wonderful cards he has been getting. He continues to get stronger every day. He is still not walking on his own or eating a regular diet. Superman is still recieving most of his feeds through the nasal gastric tube. The rate he going he will never be on a regular diet. He likes to hold the yogurt, pudding, or applesauce in his mouth instead of swallowing it and ends coughing because of it. He is still getting breathing treatments as well.

Follow up!

Superman had his follow appointment today. The doctor said he sounds much better today. He still needs to finish up his antibiotics though. How do you like his gloves? He has to wear them so he doesn’t rip his nasal gastric tube out. I know some of you will think it is cruel but, you don’t have to take a hour to put it back in. I am getting tired of the ambulance rides back and forth to his appointments. He has an appointment tomorrow at the feeding- clinic at Kennedy kreiger out patient center. I hope they up the amount he can have by mouth tomorrow because him sitting in the chair allday hooked to his feeds is not getting him any stronger. He is still having a hard time walking. When he does walk his whole body is shaking and he walks almost bent in half. He still has a long way to go before he will be walking again. This hospital stay really did a number on his strength. Please continue to pray and send positive thoughts for healing. Superman thanks everyone for all the prayers and love.