We go to the sunflower garden every year. This year Dylan was supposed to go with us since he got his ne wheelchair. But he passed away in April due SUDEP. He still made it to the sunflower garden today. Just not the way we thought. It turned out to a beautiful day!
We decided to plant a memorial garden for Dylan! We planted all kinds of flowers. Mostly the colors of Superman. We have a few purple flowers for epilepsy.
We got him a cake and some ice cream. He ate few bites of the cake but wasn’t that interested in the icecream or cake. He did try to grab the cake and a little bit icing got on his fingers and in his hair. We got him a couple tee shirts and shorts! His brother got him a couple pair of pull on pants and a Superman tee shirt and a few other things which haven’t came yet. We did sing happy Birthday to him. His memaw called earlier and sang happy birthday to him also he enjoyed that and so did his niece Delilah.
Superman finally got his new wheelchair yesterday. I am happy with it because he can be more comfortable now. Superman would like to say Happy Birthday to his big brother Dacota.
He finally got his go talk 4 the other day. Now we can work on getting him to Express himself. He didn’t want his picture taken as you can tell. At least he is smiling in the one picture. I am so happy he is finally feeling better as well.
So, Superman hasn’t been feeling well. He slept through Christmas eve and most of Christmas day. He did wake up for a little while and open a few presents. Superman says thank you for the gifts. Send prayers and positive thoughts for healing. My present for him still hasn’t arrived yet. I got him a go talk 4 hopefully it gets here soon.
Found this yesterday when I was out shopping for Christmas. I just had to get it for Superman! He doesn’t seem to like to much but you can see that by looking at the pictures!
Superman had a good time at his cousin’s 13th birthday party today. He got to enjoy chocolate and vanilla ice cream today. He took a little nap for a little while. It was nice to see everyone. I hope the Birthday girl enjoyed her day. It will be a year since Dylan was hospitalized on coming up on Halloween. He, still isn’t back to his normal self but is continuing to improve slowly.
Superman had fun at the pumpkin patch! He helped pick out a pumpkin to carve. The only thing that wasn’t fun was all the bees everywhere. They had lots of fun stuff to do. Hayrides, a little haunted house, music. They also had a store you could buy fresh vegetables and pies. The pumpkin patch we went to was Webster”s farm.
Dylan had a good time at the family reunion. The reason why he had such a good is he got to eat some mashed potatoes and gravy. We sat at the table most of the time so we didn’t really get to talk to many people unless they came over to say hi. The reason for staying at the table is because he still has his ng tube so, I had to watch him like a hawk because of that. It was nice seeing everyone.