This guy right here has a swallow study coming up this month. Hopefully he doesn’t end with any respiratory problems between now and then. We was told if he does have any respiratory issues the appointment would be canceled. His study is on July 19. So please keep Superman in your prayers and positive thoughts that he stays healthy between now and his appointment. This will determine if the ng tube can be removed. Now all we have do is get him up on his feet and walking on his own.
We just got done cleaning Dylan up! So, we decided to take a few pictures of him. But he was not to happy at first then he started smiling.
So Superman has been receiving Christmas cards. They only check the mail once a week. But yesterday he received a present from someone and it was a special gift. Thank you so much you know who you are. Superman loves it. I will post more pictures later with his gift when he is more awake. They had to up his seizure medications again and now all he wants to do is sleep. Thanks to everyone who has sent cards also thanks for all the prayers and well wishes. He is continuing to make progress.
So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!
The Lombard puncture showed no sign of infection. Today the plan is to wean him down on the phenobarbital so he can start showing some brain function. Also his is going to have an MRI at some point today. Please keep the prayers coming because my Superman needs all the prayers he can get. Thanks to everyone for all the prayers and positive thoughts.
Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.
At Dylan’s school they started this program to earn tickets for good behavior. So, Dylan earned tickets to go Christmas shopping and this is the gift he got me. This is the second year they have done this. It is awesome idea for the children. He got the queen part right. Haha just joking.