Pictures!!

These are pictures of Superman from his swallow study!

Swallow study coming up!

This guy right here has a swallow study coming up this month. Hopefully he doesn’t end with any respiratory problems between now and then. We was told if he does have any respiratory issues the appointment would be canceled. His study is on July 19. So please keep Superman in your prayers and positive thoughts that he stays healthy between now and his appointment. This will determine if the ng tube can be removed. Now all we have do is get him up on his feet and walking on his own.

Superman is bad!

Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.

💜Update on Superman 💜

So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!

Superman is feeling better.

Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle. 20180907_101056.jpg

Back to school for Superman!!!!!

Today was Supermans first day back to school since the summer break. His thoughts on going back to school are explained in the pictures. I know the pictures aren’t the best but this how Superman is. He doesn’t like his picture taken to much. I hope he has a great day. Love you, Superman.20180905_08304420180905_08305620180905_08305020180905_085640