Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.
So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!
Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle.
My Superman is always hungry you feed him his dinner and he will be hungry five minutes later. So, the kitty came to sit with him yesterday and I guess he thought the kitty was food. He tried to grab the kitty and eat him.
So, I went to put Dylan on the bus this morning and he decided to lean back before I had full control of him and ‘ I said dammit Dylan why did you do that.’ so I had to pick him up out of the chair to fix him again. Mind you he is about 5’5 and weighs about 125 pounds that is my height as well not my weight though. All the while the bus helper is standing up on the bus shaking her head the whole time in judgment of me doing and saying anything to my son. I’m getting tired of her rude attitude towards me and how I deal with my son. I told her this morning if she thinks she can do a better job of it she can have a go at it. I called to complain about her also. I’m so glad the school year is over with and I hope she is not his bus aide ever again. Just do the job you are hired to do and keep your judgments to yourself.