Tag: draining

Update on Superman!

So Superman is running a fever again. The seizures are back again. They are not sure what is going on now. Running a lot of tests again. So, Thursday or Friday afternoon when he was getting his deep suctioning he aspirated and they think that might be the cause of the fever. They are trying to get the ball rolling to get him on the epidiolex the cbd approved medication. Oh not mention his room was moved again. Once again I am asking for prayers and positive thoughts. Thanks for all the love for my Superman.

Bath time with Dylan/ being sick!

The bath part is easy with him, it’s afterwards that is the problem.  When his bath is over he just wants to lay in the tub and do nothing. So, I have to struggle to get him out. Then we go in the room to get him dressed and thats when the fun begins. He does not like to cooperate with you at all. By the time I’m done getting him dressed I’m soaking wet with sweat. Not mention he has been home sick all week, with this cold that has been going around. So, I’m one tired mommy this week. I told him he has to go back tomorrow and I don’t think he liked the idea to much. I have to catch up on my school work too. I love you Dylan my Superman!❤