Present!

This is a blanket his big brother Dacota made for Superman! He did an awesome job on it! It even looks like him. Superman is starting to feel a little bit better! Thanks for all the prayers and positive thoughts!

Christmas!

So, Superman hasn’t been feeling well. He slept through Christmas eve and most of Christmas day. He did wake up for a little while and open a few presents. Superman says thank you for the gifts. Send prayers and positive thoughts for healing. My present for him still hasn’t arrived yet. I got him a go talk 4 hopefully it gets here soon.

Some cute pictures from Halloween!

Superman didn’t go trick or treating. He did have some fun at home though. His sister took some snapchat pictures of him. His brother carved a pumpkin in the Superman emblem. So, I can say he had better Halloween than last year he is not in the hospital.

Cute pictures!

Some cute pictures of Superman and his niece Delilah! She loves her uncle Dylan. If you ask her who uncle Dylan is she looks right at him.

Superman is still sick!

We took Dylan to the doctors this morning and it wasn’t good news. The doctor wanted to admit him to the hospital. He says he has bronchitis or pneumonia. But he gave him a breathing treatment in the office and his oxygen level came back up so he let us take him home. He is on an antibiotics, steroids and breathing treatments every 4 to 6 hours. He has to go back to the doctors tomorrow morning to be checked out again. Please continue to pray and send positive thoughts.

Swallow study coming up!

This guy right here has a swallow study coming up this month. Hopefully he doesn’t end with any respiratory problems between now and then. We was told if he does have any respiratory issues the appointment would be canceled. His study is on July 19. So please keep Superman in your prayers and positive thoughts that he stays healthy between now and his appointment. This will determine if the ng tube can be removed. Now all we have do is get him up on his feet and walking on his own.

Update on Superman!

So Superman is running a fever again. The seizures are back again. They are not sure what is going on now. Running a lot of tests again. So, Thursday or Friday afternoon when he was getting his deep suctioning he aspirated and they think that might be the cause of the fever. They are trying to get the ball rolling to get him on the epidiolex the cbd approved medication. Oh not mention his room was moved again. Once again I am asking for prayers and positive thoughts. Thanks for all the love for my Superman.