We got him a cake and some ice cream. He ate few bites of the cake but wasn’t that interested in the icecream or cake. He did try to grab the cake and a little bit icing got on his fingers and in his hair. We got him a couple tee shirts and shorts! His brother got him a couple pair of pull on pants and a Superman tee shirt and a few other things which haven’t came yet. We did sing happy Birthday to him. His memaw called earlier and sang happy birthday to him also he enjoyed that and so did his niece Delilah.
A few new pictures of Superman!
He finally got his go talk 4 the other day. Now we can work on getting him to Express himself. He didn’t want his picture taken as you can tell. At least he is smiling in the one picture. I am so happy he is finally feeling better as well.
This is a blanket his big brother Dacota made for Superman! He did an awesome job on it! It even looks like him. Superman is starting to feel a little bit better! Thanks for all the prayers and positive thoughts!
Found this yesterday when I was out shopping for Christmas. I just had to get it for Superman! He doesn’t seem to like to much but you can see that by looking at the pictures!
Superman didn’t go trick or treating. He did have some fun at home though. His sister took some snapchat pictures of him. His brother carved a pumpkin in the Superman emblem. So, I can say he had better Halloween than last year he is not in the hospital.
Superman had fun at the pumpkin patch! He helped pick out a pumpkin to carve. The only thing that wasn’t fun was all the bees everywhere. They had lots of fun stuff to do. Hayrides, a little haunted house, music. They also had a store you could buy fresh vegetables and pies. The pumpkin patch we went to was Webster”s farm.
Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.
So Superman is running a fever again. The seizures are back again. They are not sure what is going on now. Running a lot of tests again. So, Thursday or Friday afternoon when he was getting his deep suctioning he aspirated and they think that might be the cause of the fever. They are trying to get the ball rolling to get him on the epidiolex the cbd approved medication. Oh not mention his room was moved again. Once again I am asking for prayers and positive thoughts. Thanks for all the love for my Superman.
So Superman has been receiving Christmas cards. They only check the mail once a week. But yesterday he received a present from someone and it was a special gift. Thank you so much you know who you are. Superman loves it. I will post more pictures later with his gift when he is more awake. They had to up his seizure medications again and now all he wants to do is sleep. Thanks to everyone who has sent cards also thanks for all the prayers and well wishes. He is continuing to make progress.