Tag: computer

Super man says thank you!

Superman Dylan would like to thank everyone for the wonderful get well cards and Christmas cards. He is sitting up in a chair today, but he still managed to find away to get them legs up. Oh yeah, not mention we are now on day 31 at John Hopkins picu. Thanks again for the prayers and positive thoughts! Superman loves you!๐Ÿ’œ

๐Ÿ’œUpdate on Superman Dylan!๐Ÿ’œ

They took him off the ventilator yesterday, it was hard to watch him at first because he was choking and gagging a lot. He is doing much better today. Physical therapy came today and had him sitting up on the side of the bed first time in 21 days, he was getting tired from it. So he is resting now. He did have a fever overnight. So far today he hasn’t had fever. His blood pressure was a little low overnight. Baby steps but he his headed in the right direction. The chest Xray shows some improvement on in his lungs, but he still has ways to go. He has been doing a lot of wheezing today. I have been suctioning him a lot today, it is bring a lot of the junk up from his chest. He was happy to see you balls today but he didn’t grab for them yet. I think the chest tube is to painful for him to reach.

๐Ÿ’œUpdate on Superman ๐Ÿ’œ

So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!

Superman is feeling better.

Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle.ย 20180907_101056.jpg

Back to school for Superman!!!!!

Today was Supermans first day back to school since the summer break. His thoughts on going back to school are explained in the pictures. I know the pictures aren’t the best but this how Superman is. He doesn’t like his picture taken to much. I hope he has a great day. Love you, Superman.20180905_08304420180905_08305620180905_08305020180905_085640

Hungry!!!

My Superman is always hungry you feed him his dinner and he will be hungry five minutes later. So, the kitty came to sit with him yesterday and I guess he thought the kitty was food.ย  He tried to grab the kitty and eat him.