It has been a year since you was taken away from us by this evil thing know as SUDEP. It doesn’t seem like it has been a year already. Everything was just rushed after you passed away. It just seemed like a dream that I relive everyday. I miss coming downstairs to your beautiful smile. Dylan you are truly missed and loved my sweet angel.
My sweet Dylan’s birthday in on Thursday and it is going to be one of the hardest days since he passed away. He should still be here but this thing called SUDEP stole his life from him and those that loved him. We sure do miss you Dylan. Not one day goes by without thinking about you. Some days are harder then others but we manage to get through with all the love you left in our hearts. You received a birthday card the other day. It some dinosaur stickers in it.
The real superman my brother my bestfriend, so how do i start I got to grow up with someone who loved so much and so unconditionally you wouldn’t believe, all the battles he fought through he made me strong he made me believe in real genuine love that isn’t easy to find in this world he was the light to the dark the star in the night sky and he deserved the best life you are an angel in the heaven who will shine the light and protect us you are superman the strongest person I’ve ever seen and met and I’m glad I got to live life with you and that I got to be your brother and got to receive the love you gave you are my inspiration you kept me going and I will fight hard for you just please keep an eye over us I know you are in heaven laughing and playing being happy waiting for us all to meet again
Long live the real superman
Superman finally got his new wheelchair yesterday. I am happy with it because he can be more comfortable now. Superman would like to say Happy Birthday to his big brother Dacota.
He finally got his go talk 4 the other day. Now we can work on getting him to Express himself. He didn’t want his picture taken as you can tell. At least he is smiling in the one picture. I am so happy he is finally feeling better as well.
So, Superman hasn’t been feeling well. He slept through Christmas eve and most of Christmas day. He did wake up for a little while and open a few presents. Superman says thank you for the gifts. Send prayers and positive thoughts for healing. My present for him still hasn’t arrived yet. I got him a go talk 4 hopefully it gets here soon.
These are pictures of Superman from his swallow study!