This is Dylan’s new Helmet that was specially designed for him by some college Engineer students. I entered a contest and my essay was chosen we were asked what we needed for Dylan and we told them a new helmet. They asked us if there were anything we wanted special and we told them we call him Superman and this is the design they came up with. I Love the D inside the shield instead of the S
The Real Superman Part VIIII
By Jeff King
We made an appointment to see a Neurologist at Sinai hospital in Baltimore city. The Neurologist was supposedly one of the best around. We met him and he had all of Dylan’s hospital records from the previous seven years. Our first impression was a good one of this gentleman. He seemed very knowledgeable and genuinely caring. He played with Dylan and made us feel at ease. He talked about a treatment program that we should start and the first medicine he prescribed for Dylan was a seizure medication known as Lamictal. Lamictal would have the least effect on Dylan’s cognitive skills, so the neurologist explained. We began to give him this new medicine and right away, the seizures stopped. He was doing so well on this medication. We felt like the seizure activity that he had been experiencing was just a little hic up in his overall health, but now with this new medication, he would be back on track.
He continued to make progress and the seizures hadn’t effected his cognitive skills as of yet. He was loving on a new show Yo Gabba Gabba and his favorite character on this program was a little fuzzy monster-like dude named Broobie. Dylan quickly learned the songs on this show and began to sing them. His favorite was called “Party in my Tummy” I still remember Dylan saying, “Does the green beans want to go to the party in my tummy?” He would wait several seconds before answering that question, “Yeah” then he’d break into the song, “There’s a party in my tummy, so yummy, so ,yummy, there’s a party in my tummy!” You get the gist of it.
We weren’t really concerned about Dylan’s cognitive skills. He continued to learn how to say words and use sentences. We understood that most of his language was mimicking what he heard, but, he did know and understand so much. Maybe we should have been more concerned, but at the time there was no indication that he would regress and become nonverbal.
After about two weeks of taking the Lamictal Terri noticed a slight rash around his mouth. We weren’t sure what it was so she called the neurologist to voice our concerns. He asked us to watch him overnight and see if the rash got worse. He never told us to stop giving Dylan the Lamictal. The next day the rash had spread all over his body and he was covered in big blotches. His skin looked as if he had an extreme sunburn. We called the neurologist and he told us to bring him into his office right away. We took him into his office and he said, “I was hoping that this wasn’t going to happen? He’s having an allergic reaction to the medication. He then prescribed some antibiotics to begin giving to Dylan right away. He told us to discontinue the Lamictal. We took him home and gave him the antibiotic. It was about a week before he was better. The neurologist then prescribed Clonazepam tablets to begin giving him. These things would begin to have Dylan spacing out. He slowly began his dark decent into an abysmal place where we weren’t sure if we could ever get him back from.
We had gone through some very tough times before Dylan began to have these seizures. I have already mentioned how Terri went into the hospital to have surgery to remove her gallbladder. It was supposed to be a very quick and easy procedure; a same day procedure. It would be done with the doctor using endoscopic surgery. This minimally invasive surgery was supposed to be an easier and safer way for Terri to have her gallbladder removed, however, the surgeon ended up cutting a bile duct and bile from her liver began draining into her stomach. She nearly died and she had to be transferred to John Hopkins Hospital where a well renowned surgeon who had invented the surgery to fix her practiced at. He saved her life. I touched on this just a little, because about three years after Dylan was born, Terri developed a pretty big hernia, most likely from carrying around Dylan. She had to schedule another surgery with the doctor who had created a new bile duct using part of her large intestine to do it. He would perform the hernia operation, because, we didn’t trust any other hospital or doctor around. She had complications and ended up in the hospital for two weeks. She was so upset, because she kept thinking Dylan would forget who she was. He slept with me on the couch for those two weeks, which was a binding experience for the both of us.
When Terri was released from the hospital, I tried to take some time off the job I had been working for the last ten months, but, because I hadn’t been there for the entire year, I was told by their HR department that I could not do it. I had no choice to resign to take care of Terri and the children. It was a tough dark time in our lives. I can’t mention the name of the company I was working for at the time, because they may sue me if I was to, but let’s just say that they were an up and coming Baltimore Clothing company that has ties to the NFL and whose clothes can now be seen in movies, and even other sports franchises. They were not very family friendly and it is sad that the owner got rich off the backs of his workers and didn’t care if those workers had families or more important things to attend to. I could say Karma is well you know. I know I am being so cliché. Anyway, it is my sincerest hope that the owner will one day reap what he has sown!
I mention these things only because it sets the events in the story of what troubles we would have to face next. We as a family had continuously walked through the shadows, but each and every time we came out holding tight to the light of a promise. A promise of a new and brighter day. Little did we know that this struggle was just getting started. (To be continued.)
I got this made for the garden! It is smaller than I expected. But it turned out beautiful.
Dylan’s big brother Dacota had this made for me. It is a beautiful gift and memory I will treasure always. I love it. I can’t believe tomorrow will be three months already. It seems like yesterday we said goodbye to our Superman. We love you Dylan and miss you so much.
This is the urn we got for our Superman Dylan!
The colors represent Superman and epilepsy! It is looking more beautiful everyday.
We decided to plant a memorial garden for Dylan! We planted all kinds of flowers. Mostly the colors of Superman. We have a few purple flowers for epilepsy.
Have you ever met an Angel?
My family and I were blessed with not only meeting an Angel, but actually blessed with one who lived with us 17 years. This Angel, was our teacher, preacher, bestfriend and brother to his siblings. He was our son, our dream, our song! Have you ever met an Angel? Mine was loving, kind, caring, and pure! He taught us unconditional Love, patience, passion and sacrifice! He showed us strength and courage and taught us how to believe, dream, persevere and even to forgive! Whenever I looked into his eyes, I seen the Face of Almighty God. Through his pain and suffering, he never cried, complained, or gave up! He taught us what it means to fight courageously every day of life! He showed us how to be servants of Love and Compassion! We had to wash and dress him, feed him, protect him and Love him with all our entire being! Have you ever met an Angel? Mine was the light and the Love of God himself; a beacon of light and hope in a dark and scary world! He was our guide our light, our comforter! Have you ever met an Angel? Our Angel was given to us for an appointed time. He was sent to teach us that Love is the strongest force in the Universe! He showed us that anger, pride, hate and envy aren’t the answer, but love is! Love for your fellow human being. No matter what! Have you ever met an Angel? Mine was the greatest Love in my entire life, a love that I just can’t start to explain! My world is a lot darker and a lot emptier today because my Angel had to return to heaven. He went to help prepare a place for each and everyone of his loved ones! My Angel was loved by thousands and he touched the hearts and lives of so many people. My Angel was sent to us for us to care for and protect and to Love him. Now my Angel has went home to the Almighty and now he watches over and helps guide and protects us! Have you ever met an Angel? Mine was my son, my song my light!
Dylan King I Love you and I will miss you, but I know that we’ll see each other again. You’ll run up to me and you’ll help me to stand, you’ll help dress me for heaven. You’ll be the one to show me around whenever my time is over here! I Love you son and I am going to miss you!
Written by his father.
The real superman my brother my bestfriend, so how do i start I got to grow up with someone who loved so much and so unconditionally you wouldn’t believe, all the battles he fought through he made me strong he made me believe in real genuine love that isn’t easy to find in this world he was the light to the dark the star in the night sky and he deserved the best life you are an angel in the heaven who will shine the light and protect us you are superman the strongest person I’ve ever seen and met and I’m glad I got to live life with you and that I got to be your brother and got to receive the love you gave you are my inspiration you kept me going and I will fight hard for you just please keep an eye over us I know you are in heaven laughing and playing being happy waiting for us all to meet again
Long live the real superman
Superman just stopping by to say Happy Easter to everyone. He has been doing pretty good lately. Thanks for the Easter card. I hope everyone has a wonderful Easter. Love you all.