Dylan’s birthday was March 25! I forgot to post about these cards from his grandmother’s! Thank you both so much for the cards and beautiful words for our Superman. We love you both so much appreciate everything you do for us.
My sweet Dylan’s birthday in on Thursday and it is going to be one of the hardest days since he passed away. He should still be here but this thing called SUDEP stole his life from him and those that loved him. We sure do miss you Dylan. Not one day goes by without thinking about you. Some days are harder then others but we manage to get through with all the love you left in our hearts. You received a birthday card the other day. It some dinosaur stickers in it.
We go to the sunflower garden every year. This year Dylan was supposed to go with us since he got his ne wheelchair. But he passed away in April due SUDEP. He still made it to the sunflower garden today. Just not the way we thought. It turned out to a beautiful day!
We got him a cake and some ice cream. He ate few bites of the cake but wasn’t that interested in the icecream or cake. He did try to grab the cake and a little bit icing got on his fingers and in his hair. We got him a couple tee shirts and shorts! His brother got him a couple pair of pull on pants and a Superman tee shirt and a few other things which haven’t came yet. We did sing happy Birthday to him. His memaw called earlier and sang happy birthday to him also he enjoyed that and so did his niece Delilah.
This handsome guy will be seventeen tomorrow!
A few new pictures of Superman!
He finally got his go talk 4 the other day. Now we can work on getting him to Express himself. He didn’t want his picture taken as you can tell. At least he is smiling in the one picture. I am so happy he is finally feeling better as well.
So, Superman hasn’t been feeling well. He slept through Christmas eve and most of Christmas day. He did wake up for a little while and open a few presents. Superman says thank you for the gifts. Send prayers and positive thoughts for healing. My present for him still hasn’t arrived yet. I got him a go talk 4 hopefully it gets here soon.
Dylan had a good time at the family reunion. The reason why he had such a good is he got to eat some mashed potatoes and gravy. We sat at the table most of the time so we didn’t really get to talk to many people unless they came over to say hi. The reason for staying at the table is because he still has his ng tube so, I had to watch him like a hawk because of that. It was nice seeing everyone.