So we finally got to have Dylan’s celebration of life because the restrictions have been lifted. It was a beautiful day even with the heat and humidity. Lots of food, family and fun. We all got talk about our favorite memories of you my sweet angel! One of the most favorite memories was how you use to say a certain bad word and they always said you used it appropriately. We all sure do miss you more then words can say. I would love to say a big thank you to everyone who showed up today. We also would like to thank everyone for the donations for the epilepsy awareness foundation. We received 105.00 dollars for it. A big thank to my nephews fiance for the beautiful picture she made for us.
Tag: death
Dylan’s balloon release!
It has been a year since you was taken away from us by this evil thing know as SUDEP. It doesn’t seem like it has been a year already. Everything was just rushed after you passed away. It just seemed like a dream that I relive everyday. I miss coming downstairs to your beautiful smile. Dylan you are truly missed and loved my sweet angel.
Birthday cards!
Dylan’s birthday was March 25! I forgot to post about these cards from his grandmother’s! Thank you both so much for the cards and beautiful words for our Superman. We love you both so much appreciate everything you do for us.
Dylan’s Birthday!

My sweet Dylan’s birthday in on Thursday and it is going to be one of the hardest days since he passed away. He should still be here but this thing called SUDEP stole his life from him and those that loved him. We sure do miss you Dylan. Not one day goes by without thinking about you. Some days are harder then others but we manage to get through with all the love you left in our hearts. You received a birthday card the other day. It some dinosaur stickers in it.
Fireworks for Dylan!

Updated pictures of the garden!

The colors represent Superman and epilepsy! It is looking more beautiful everyday.
Superman!

New wheelchair!


Superman finally got his new wheelchair yesterday. I am happy with it because he can be more comfortable now. Superman would like to say Happy Birthday to his big brother Dacota.
Present!
This is a blanket his big brother Dacota made for Superman! He did an awesome job on it! It even looks like him. Superman is starting to feel a little bit better! Thanks for all the prayers and positive thoughts!
Found this yesterday!
Found this yesterday when I was out shopping for Christmas. I just had to get it for Superman! He doesn’t seem to like to much but you can see that by looking at the pictures!