Tag: body

Update on Superman!

So Superman is running a fever again. The seizures are back again. They are not sure what is going on now. Running a lot of tests again. So, Thursday or Friday afternoon when he was getting his deep suctioning he aspirated and they think that might be the cause of the fever. They are trying to get the ball rolling to get him on the epidiolex the cbd approved medication. Oh not mention his room was moved again. Once again I am asking for prayers and positive thoughts. Thanks for all the love for my Superman.

Update on Superman!💜

So, Superman is still in John Hopkins. His seizures started to increase again, that means more test. He had 26 seizures yesterday. They are still talking about rehab, I am not real happy about that we have been here 42 days now. It sure would be nice to be home for Christmas but that doesn’t look like it’s going to happen.

Update on my Superman!

Today is the first day I can say things are headed in the right direction. Superman got cleaned up by mommy today. We are having a family meeting Wednesday at 6:30. He is even starting look better finally. I have not been feeling good myself, been dealing with a toothache for some time now. It is finally starting to feel better. He looks so handsome with his hair spiked up. Thanks again for all the prayers and positive thoughts. Much love from Superman and his family.

Super man says thank you!

Superman Dylan would like to thank everyone for the wonderful get well cards and Christmas cards. He is sitting up in a chair today, but he still managed to find away to get them legs up. Oh yeah, not mention we are now on day 31 at John Hopkins picu. Thanks again for the prayers and positive thoughts! Superman loves you!💜

Superman update!💜

So this happened today. They had him on bed today that rotated to a standing position. He tolerated it pretty well, he was standing up for about 20 minutes. It looks like he has gotten taller to me. They also removed the second chest tube. He does still have to be suctioned regularly because he still has a lot of secretions. They want to talk to us about going to rehab and few other things. Thanks for all the prayers and positive thoughts. Superman sure appreciates everything.

Update on Superman!

20181124_1216133905205996904176729.jpgWe are now on day 25 since Superman was admitted to John Hopkins. Today is the first day he has been in a chair since being here. He still sounds really congested. They do breathing treatments four times a day and suctioning him out regularly. He was supposed to go down to IR to have a procedure done yesterday but they couldn’t fit him in. So he is suppose to go Monday. Hopefully they don’t cancel it again. He is still really week. Please continue to pray and send positive thoughts. Thanks all the prayers and positive thoughts. 💜

Not a good night!!!

Superman had a rough night. His blood pressure kept dropping down to 70/30 they had put him back on the norepinephrine to help with that. He is also on the c- pap instead of the nasal cannula. He has been resting most of the morning. Oh yeah that’s right it is Thanksgiving, Happy Thanksgiving everyone from Superman at John Hopkins. Please continue to pray for my Superman and thanks for all the prayers and positive thoughts.