A few pictures of Superman!

My Superman is growing up up to fast. I can’t believe how much he has changed. He is so handsome.

Cute pictures!

Some cute pictures of Superman and his niece Delilah! She loves her uncle Dylan. If you ask her who uncle Dylan is she looks right at him.

Dylan is sick!

Dylan is not feeling good today because we had to replace the ng tube over the weekend. Everytime we have to put the tube back in Superman ends up sick. He still has been refusing to cough. If we could get him to do that we probably wouldn’t have this problem everytime we replace th ng tube. Please keep him in your prayers and positive thoughts. Thank you in advance. He was resting last night with his niece Delilah. It was so adorable.

Sweatshirt

This is a sweatshirt my older son Dacota designed for his little brother Dylan also known as Superman. I think he did a wonderful job on it. He loves his brother so much. Superman has been doing pretty good lately. He is still on the ng tube and going to physical therapy ever other week but he still is not walking on his own.

Superman!

This, guy right here is still not walking yet. This recovery from necrotizing pneumonia is taking way to long. I thought he would be walking by now. It has been six months now altogether. Therapy is going okay but it takes 20 minutes for him to get warmed up. I am so mad at the doctors at John Hopkins for taking so long to diagnose him.

Cards!!

Superman would like to thank everyone for all the wonderful cards he has been getting. He continues to get stronger every day. He is still not walking on his own or eating a regular diet. Superman is still recieving most of his feeds through the nasal gastric tube. The rate he going he will never be on a regular diet. He likes to hold the yogurt, pudding, or applesauce in his mouth instead of swallowing it and ends coughing because of it. He is still getting breathing treatments as well.

Look who is finally home!

Superman came home yesterday by ambulance. He is not cleared for car traveling yet. He still has his NG tube in and we have to cathe him now because one of his medications is causing him not to be able to urinate. So we had to get trained on the NG tube replacement and cathing him. Which is harder than we thought it would be. But we are home and that is all that matters. He seems to be adjusting to home life okay. Thanks for all the prayers and positive thoughts. Superman loves and appreciates all the love from everyone.