Snapchat fun and cute pictures!

Some cute pictures of Superman and his niece Delilah! Dylan really doesn’t like his picture taken often so, you have to do it when he is in a good mood or feeling good. Which is not that often here lately. Please him in your prayers. Thanks!

Stair lift

Superman finally got his stair lift installed today. They had me test it out to make it works properly. It goes up pretty quickly. This will help out a great deal with getting him to the shower. I’m not sure how he will feel about it though.

Hospital bed!

So we finally got a hospital bed for Dylan! I had to put it in my living room. So, Superman is still sleeping downstairs still but he is more comfortable now. A thank you to wonderful couple who donated it to us. He also got a nice little gift in the mail from someone special. He says thank you so much. Superman has not been feeling to good lately. I am asking for healing prayers for Superman. Thanks in advance.

Superman!

This, guy right here is still not walking yet. This recovery from necrotizing pneumonia is taking way to long. I thought he would be walking by now. It has been six months now altogether. Therapy is going okay but it takes 20 minutes for him to get warmed up. I am so mad at the doctors at John Hopkins for taking so long to diagnose him.

Feeding clinic appointment!

This guy has an appointment tomorrow at the feeding clinic at Kennedy kreiger! I hope they give us some good news about the nasal gastric tube and his feedings. The news I, wish for is that he doesn’t have to have it anymore because it has become a pain in the butt. Especially when he pulls it out, then it takes me awhile to get it back in. He does everything he can to hinder it from going back in. He will bite it, he won’t swollow it and he thinks it funny the whole time. Another reason ,I don’t like it is because he always ends up sick for a couple a days.

Uncle Dylan!

Dylan is starting to feel better so, he was snuggling with his niece last night. He rolled over closer to her. The cat also had to get in one of the pictures too. We finally got air mattress from my moms house. Thanks so much for letting us use it sis. It is better then trying to take Dylan upstairs ever night. He still refuses to do his physical therapy. He has an appointment at cypress creek Saturday, hopefully he does work then.

Haircut!

Superman got his haircut. It took three of us to do it but we got done. Don’t he look so handsome. He is still not back to himself yet. He is still working hard towards his goals. Again thanks for all the wonderful cards and prayers. He will be starting the Epidiolex this week.