So we finally got a hospital bed for Dylan! I had to put it in my living room. So, Superman is still sleeping downstairs still but he is more comfortable now. A thank you to wonderful couple who donated it to us. He also got a nice little gift in the mail from someone special. He says thank you so much. Superman has not been feeling to good lately. I am asking for healing prayers for Superman. Thanks in advance.
Dylan is starting to feel better so, he was snuggling with his niece last night. He rolled over closer to her. The cat also had to get in one of the pictures too. We finally got air mattress from my moms house. Thanks so much for letting us use it sis. It is better then trying to take Dylan upstairs ever night. He still refuses to do his physical therapy. He has an appointment at cypress creek Saturday, hopefully he does work then.
Superman came home yesterday by ambulance. He is not cleared for car traveling yet. He still has his NG tube in and we have to cathe him now because one of his medications is causing him not to be able to urinate. So we had to get trained on the NG tube replacement and cathing him. Which is harder than we thought it would be. But we are home and that is all that matters. He seems to be adjusting to home life okay. Thanks for all the prayers and positive thoughts. Superman loves and appreciates all the love from everyone.
We are finally at rehab! He is not adjusting to it well. He will not go to sleep. He has had 10mg of melatonin and is still not asleep. They have so many rules here it is not funny. No heating pad and no bags in the fridge, you have to label all your stuff. The one good thing is that he has his own room for now. He has been having a bunch of seizures since we have been here. I hope this rehab stay goes by quick because I am starting to get tired. I just want too be home now. It has been to long. Please continue to pray for my Superman and send positive thoughts. Thanks for all the love.
Superman wants to say a big thank you for the wonderful donations that Michelle Belle collected to make our stay at the hospital more bearable. A big thank you to all that donated the wonderful gift cards, the parking passes, the check, snacks, and everything else. It is much appreciated. Please continue to pray for my Superman and send positive thoughts. Superman says thanks for all the love.
So, Superman is still in John Hopkins. His seizures started to increase again, that means more test. He had 26 seizures yesterday. They are still talking about rehab, I am not real happy about that we have been here 42 days now. It sure would be nice to be home for Christmas but that doesn’t look like it’s going to happen.
We are now on day 25 since Superman was admitted to John Hopkins. Today is the first day he has been in a chair since being here. He still sounds really congested. They do breathing treatments four times a day and suctioning him out regularly. He was supposed to go down to IR to have a procedure done yesterday but they couldn’t fit him in. So he is suppose to go Monday. Hopefully they don’t cancel it again. He is still really week. Please continue to pray and send positive thoughts. Thanks all the prayers and positive thoughts. 💜