So we finally got to have Dylan’s celebration of life because the restrictions have been lifted. It was a beautiful day even with the heat and humidity. Lots of food, family and fun. We all got talk about our favorite memories of you my sweet angel! One of the most favorite memories was how you use to say a certain bad word and they always said you used it appropriately. We all sure do miss you more then words can say. I would love to say a big thank you to everyone who showed up today. We also would like to thank everyone for the donations for the epilepsy awareness foundation. We received 105.00 dollars for it. A big thank to my nephews fiance for the beautiful picture she made for us.
Dylan birthday was on Thursday he would of turned 18 but he lost his battle with epilepsy due to SUDEP on April 24,2020. Next month will be a year without my sweet angel. Things are hard without you here. We all love and miss you so much Dylan. You brought so much joy to our lives. Not one day goes by without you in our hearts. We celebrated your birthday at one of your favorite places to eat and that was the Outback. We got burgers for you sweetheart! Some of the pictures are from world epilepsy day.
The colors represent Superman and epilepsy! It is looking more beautiful everyday.
The real superman my brother my bestfriend, so how do i start I got to grow up with someone who loved so much and so unconditionally you wouldn’t believe, all the battles he fought through he made me strong he made me believe in real genuine love that isn’t easy to find in this world he was the light to the dark the star in the night sky and he deserved the best life you are an angel in the heaven who will shine the light and protect us you are superman the strongest person I’ve ever seen and met and I’m glad I got to live life with you and that I got to be your brother and got to receive the love you gave you are my inspiration you kept me going and I will fight hard for you just please keep an eye over us I know you are in heaven laughing and playing being happy waiting for us all to meet again
Long live the real superman
Superman just stopping by to say Happy Easter to everyone. He has been doing pretty good lately. Thanks for the Easter card. I hope everyone has a wonderful Easter. Love you all.
We got him a cake and some ice cream. He ate few bites of the cake but wasn’t that interested in the icecream or cake. He did try to grab the cake and a little bit icing got on his fingers and in his hair. We got him a couple tee shirts and shorts! His brother got him a couple pair of pull on pants and a Superman tee shirt and a few other things which haven’t came yet. We did sing happy Birthday to him. His memaw called earlier and sang happy birthday to him also he enjoyed that and so did his niece Delilah.
He finally got his go talk 4 the other day. Now we can work on getting him to Express himself. He didn’t want his picture taken as you can tell. At least he is smiling in the one picture. I am so happy he is finally feeling better as well.
This is a blanket his big brother Dacota made for Superman! He did an awesome job on it! It even looks like him. Superman is starting to feel a little bit better! Thanks for all the prayers and positive thoughts!