Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle.
So, I went to put Dylan on the bus this morning and he decided to lean back before I had full control of him and ‘ I said dammit Dylan why did you do that.’ so I had to pick him up out of the chair to fix him again. Mind you he is about 5’5 and weighs about 125 pounds that is my height as well not my weight though. All the while the bus helper is standing up on the bus shaking her head the whole time in judgment of me doing and saying anything to my son. I’m getting tired of her rude attitude towards me and how I deal with my son. I told her this morning if she thinks she can do a better job of it she can have a go at it. I called to complain about her also. I’m so glad the school year is over with and I hope she is not his bus aide ever again. Just do the job you are hired to do and keep your judgments to yourself.
So Snap-chat had superman filter and Dylan had some fun with it. Now he is the real Superman!!!!!!!!!!!!
So snap-chat had a superman filter!
Dylan actually had a good time at his party. He managed to stay awake the whole time. Last year Superman slept through his party! It turned out to be a wonderful day and Superman enjoyed himself.
This guy has to have his battery changed again in his VNS. He went for an appointment today and the VNS therapist could not even get a reading on it so they are going to change the whole thing out to a newer model that detects an increase in his heartbeat and it will zap the seizure or lesson the seizure. He goes next Tuesday to have it changed. So keep him your prayers.
Thanksgiving day Dylan sat patiently waiting to eat his turkey dinner. He was so happy because he was doing one of his favorite things.(eating) Sorry, it’s been so long since I’ve posted, but I have been busy finishing up my classes. The best part about Thanksgiving was that we had a new stove to cook the turkey in.