๐Ÿ’œUpdate on my Superman!๐Ÿ’œ

Sitting here at John Hopkins hoping for some answers today about what is going on with Superman. He has a CT scan today at 1 hopefully this will give us some answers instead of the doctors all telling me he is a mystery they are trying solve. He ran a temperature of 103.8 all night. He is getting weird rashes on his arms and legs. His belly has been descended for a couple days. His medications have been increased. They have helped the seizures. But with the fevers I’m, afraid they return with a bang. Please continue to pray for my Superman! I would like to thank everyone for the prayers and positive thoughts!

๐Ÿ’œUpdate on Superman ๐Ÿ’œ

So, Superman had his breathing tube removed today but it didn’t last too long they had to put it right back in because he wasn’t ready for it to come out. They took him off his rubinol which is for drooling. They put him back on it today. To help with all the secretions. They said they would try again in a couple days. We have been here since Halloween so that makes it twelve so far. I wish they figure something out. Especially what is causing the fevers. Still no explanation for them. They have done almost every test they can think of. They are calling him a mystery. I don’t know what to think about that. I wish they would figure something out and bring my Superman back to me. Please continue to pray and send positive thoughts. Thank you!

Update on Superman!

Superman is slowly coming out of the sedation coma! His poor body is all out whack. He has been given insulin because his sugar has been high. The medication take a toll on his body. Yesterday they had him on ketamine drip which raised his blood pressure, so they had to stop it. One good thing is his are stable for now. Hopefully they stay that way.

๐Ÿ’œSuperman update!๐Ÿ’œ

Superman was continuing to show seizures overnight so the started him on ketamine drip and versed to try and control them. It seems to be working. He is still not waking up. The neurology team is supposed to come talk me about the eeg findings. I hope it is some good because I sure could use some right. We have been here 8 days now and we still are playing the wait see game. I would like to thank everyone for all the prayers and positive. โค

Superman update!๐Ÿ’œ๐Ÿ’œ

Superman is slowly coming out of the sedation coma of pentobarbital his level today is 29. His eeg is showing lots of brain activity but it is still showing seizures. He is having ND tube placed today for feeding. Please continue to pray and send positive thoughts.

Another update on Superman!!!

He is starting show signs of waking up. His right pupil is responding to light finally. His left pupil is still a little dilated from them checking his eyes to make sure it wasn’t bleeding behind it. He has been having spikes on the eeg but they still seem to be seizure activity. I will know more once neurology team does rounds. One again thanks for all the prayers and positive thoughts. I just ask for continued prayers and positive thoughts. ๐Ÿ’œ