We took Dylan to the doctors this morning and it wasn’t good news. The doctor wanted to admit him to the hospital. He says he has bronchitis or pneumonia. But he gave him a breathing treatment in the office and his oxygen level came back up so he let us take him home. He is on an antibiotics, steroids and breathing treatments every 4 to 6 hours. He has to go back to the doctors tomorrow morning to be checked out again. Please continue to pray and send positive thoughts.
Tag: complications
Dylan is sick!
Dylan is not feeling good today because we had to replace the ng tube over the weekend. Everytime we have to put the tube back in Superman ends up sick. He still has been refusing to cough. If we could get him to do that we probably wouldn’t have this problem everytime we replace th ng tube. Please keep him in your prayers and positive thoughts. Thank you in advance. He was resting last night with his niece Delilah. It was so adorable.
Pictures!!
These are pictures of Superman from his swallow study!
Results for the swallow study
So the results showed that he was silently aspirating each time he swallows. We was told he could only have a half a cup of purees twice a day now. They also went back up on the ng feeds again. The biggest thing is they are always trying to push a g- tube for feeding. I want my son to be able to eat again. He loves to eat again he loves to eat. He is a cheeseburger and pizza guy. He is so sad not being able to do that anymore. He has been working really hard in his therapy’s. My first question was how is he suppose to gain his muscle strength in his throat if he is not using those muscles. They proceeded to tell me they have excercises for that and you can an appointment with me for that. Just show me the exercises and I can do them at home because you should of did that while he was inpatient at Kennedy kreiger. He shouldn’t be like this in the first place because of seizures.
Haircut!
Dylan got haircut last week. He always look so much older afterwards. Superman is having a wonderful week so far. Remember his appointment is Friday so please continue to pray and send positive thoughts for a good outcome.
Swallow study coming up!
This guy right here has a swallow study coming up this month. Hopefully he doesn’t end with any respiratory problems between now and then. We was told if he does have any respiratory issues the appointment would be canceled. His study is on July 19. So please keep Superman in your prayers and positive thoughts that he stays healthy between now and his appointment. This will determine if the ng tube can be removed. Now all we have do is get him up on his feet and walking on his own.
Hospital bed!
So we finally got a hospital bed for Dylan! I had to put it in my living room. So, Superman is still sleeping downstairs still but he is more comfortable now. A thank you to wonderful couple who donated it to us. He also got a nice little gift in the mail from someone special. He says thank you so much. Superman has not been feeling to good lately. I am asking for healing prayers for Superman. Thanks in advance.
Superman is bad!
Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.
Happy new year!
Superman says happy new year to all his fans and may you all have a blessed new year. He has been doing pretty good the past few days. We will probably be heading to rehab within the next week or so. Superman is going to Kennedy kreiger for rehab. I only plan on staying for 2 weeks that should give them plenty of time to do what they need to get him back to himself. Please continue pray and send positive thoughts and thanks for all the prayers!
Superman says thank you!
Superman wants to say a big thank you for the wonderful donations that Michelle Belle collected to make our stay at the hospital more bearable. A big thank you to all that donated the wonderful gift cards, the parking passes, the check, snacks, and everything else. It is much appreciated. Please continue to pray for my Superman and send positive thoughts. Superman says thanks for all the love.
thetruesuperman 