Swallow study coming up!

This guy right here has a swallow study coming up this month. Hopefully he doesn’t end with any respiratory problems between now and then. We was told if he does have any respiratory issues the appointment would be canceled. His study is on July 19. So please keep Superman in your prayers and positive thoughts that he stays healthy between now and his appointment. This will determine if the ng tube can be removed. Now all we have do is get him up on his feet and walking on his own.

Snapchat fun and cute pictures!

Some cute pictures of Superman and his niece Delilah! Dylan really doesn’t like his picture taken often so, you have to do it when he is in a good mood or feeling good. Which is not that often here lately. Please him in your prayers. Thanks!

Stair lift

Superman finally got his stair lift installed today. They had me test it out to make it works properly. It goes up pretty quickly. This will help out a great deal with getting him to the shower. I’m not sure how he will feel about it though.

Superman!

This, guy right here is still not walking yet. This recovery from necrotizing pneumonia is taking way to long. I thought he would be walking by now. It has been six months now altogether. Therapy is going okay but it takes 20 minutes for him to get warmed up. I am so mad at the doctors at John Hopkins for taking so long to diagnose him.

Feeding clinic appointment!

This guy has an appointment tomorrow at the feeding clinic at Kennedy kreiger! I hope they give us some good news about the nasal gastric tube and his feedings. The news I, wish for is that he doesn’t have to have it anymore because it has become a pain in the butt. Especially when he pulls it out, then it takes me awhile to get it back in. He does everything he can to hinder it from going back in. He will bite it, he won’t swollow it and he thinks it funny the whole time. Another reason ,I don’t like it is because he always ends up sick for a couple a days.

Thanks!🦸‍♂️

Superman says thank you for all the get well, Birthday, st. Patrick’s day cards! Tuesday he starts at his new physical therapy center, he will be doing aquatics. I, think he will enjoy that because he has always enjoyed the water.

Uncle Dylan!

Dylan is starting to feel better so, he was snuggling with his niece last night. He rolled over closer to her. The cat also had to get in one of the pictures too. We finally got air mattress from my moms house. Thanks so much for letting us use it sis. It is better then trying to take Dylan upstairs ever night. He still refuses to do his physical therapy. He has an appointment at cypress creek Saturday, hopefully he does work then.