Superman is slowly coming out of the sedation coma of pentobarbital his level today is 29. His eeg is showing lots of brain activity but it is still showing seizures. He is having ND tube placed today for feeding. Please continue to pray and send positive thoughts.
He is starting show signs of waking up. His right pupil is responding to light finally. His left pupil is still a little dilated from them checking his eyes to make sure it wasn’t bleeding behind it. He has been having spikes on the eeg but they still seem to be seizure activity. I will know more once neurology team does rounds. One again thanks for all the prayers and positive thoughts. I just ask for continued prayers and positive thoughts. 💜
The Lombard puncture showed no sign of infection. Today the plan is to wean him down on the phenobarbital so he can start showing some brain function. Also his is going to have an MRI at some point today. Please keep the prayers coming because my Superman needs all the prayers he can get. Thanks to everyone for all the prayers and positive thoughts.
They have in a sedative coma to keep the seizures under control. They also told me it is to give his brain a rest. Remember he came to hospital in sub clinical status. The plan for today he may have an MRI not sure about that yet. I will let everyone know more later. Thanks for all the prayers and positive vibes.💜💜
Superman has to be put on a ventilator to help him breathe now. He is having hard time breathing because of the seizures medications he has been given to control them. They are placing a central line and al line for needed medication.
Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤
Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle. 
My Superman is always hungry you feed him his dinner and he will be hungry five minutes later. So, the kitty came to sit with him yesterday and I guess he thought the kitty was food. He tried to grab the kitty and eat him.
So, I went to put Dylan on the bus this morning and he decided to lean back before I had full control of him and ‘ I said dammit Dylan why did you do that.’ so I had to pick him up out of the chair to fix him again. Mind you he is about 5’5 and weighs about 125 pounds that is my height as well not my weight though. All the while the bus helper is standing up on the bus shaking her head the whole time in judgment of me doing and saying anything to my son. I’m getting tired of her rude attitude towards me and how I deal with my son. I told her this morning if she thinks she can do a better job of it she can have a go at it. I called to complain about her also. I’m so glad the school year is over with and I hope she is not his bus aide ever again. Just do the job you are hired to do and keep your judgments to yourself.
Dylan finally got a haircut the other day. He did pretty well sitting still this time.
thetruesuperman 