Stair lift

Superman finally got his stair lift installed today. They had me test it out to make it works properly. It goes up pretty quickly. This will help out a great deal with getting him to the shower. I’m not sure how he will feel about it though.

Hospital bed!

So we finally got a hospital bed for Dylan! I had to put it in my living room. So, Superman is still sleeping downstairs still but he is more comfortable now. A thank you to wonderful couple who donated it to us. He also got a nice little gift in the mail from someone special. He says thank you so much. Superman has not been feeling to good lately. I am asking for healing prayers for Superman. Thanks in advance.

Superman!

This, guy right here is still not walking yet. This recovery from necrotizing pneumonia is taking way to long. I thought he would be walking by now. It has been six months now altogether. Therapy is going okay but it takes 20 minutes for him to get warmed up. I am so mad at the doctors at John Hopkins for taking so long to diagnose him.

Thanks!🦸‍♂️

Superman says thank you for all the get well, Birthday, st. Patrick’s day cards! Tuesday he starts at his new physical therapy center, he will be doing aquatics. I, think he will enjoy that because he has always enjoyed the water.

Cards!!

Superman would like to thank everyone for all the wonderful cards he has been getting. He continues to get stronger every day. He is still not walking on his own or eating a regular diet. Superman is still recieving most of his feeds through the nasal gastric tube. The rate he going he will never be on a regular diet. He likes to hold the yogurt, pudding, or applesauce in his mouth instead of swallowing it and ends coughing because of it. He is still getting breathing treatments as well.

Dr appointment

So Superman had an appointment with his pediatrician today and he was put on more medication for his breathing. This guy has never had any problems with his breathing until his long hospitalization. Oh not mention the ambulance rides to and from his appointments because he is still not cleared for car rides yet. His progress is slowly coming along. He ot,pt, and speech a couple times a week. His will start coming out soon for school. So, I have been busy since he has been home. Next week he has two appointments a follow up with the pediatrician and one at the feeding at Kennedy kreiger out patient. Please continue to pray for Superman and send positive thoughts. Superman says thanks for all the love, prayers, and well wishes.

Superman is bad!

Superman decided he didn’t like the tube down his nose anymore so he removed it. He is getting a break from it right now, but at five it has to be replaced for for his feeding. I hope it goes well, because he he getting back to his bad self again. I can say one thing, I’m proud of how hard he is working in therapy. Please keep the prayers and positive thoughts coming.

Superman update!

So, Superman has been doing some walking in rehab with the help of a lift. He also has the ball in the picture that motivates him to move. On Friday he did a lot of walking with mine and his PT assistant. I am proud of the progress he making.

Rehab finally!

We are finally at rehab! He is not adjusting to it well. He will not go to sleep. He has had 10mg of melatonin and is still not asleep. They have so many rules here it is not funny. No heating pad and no bags in the fridge, you have to label all your stuff. The one good thing is that he has his own room for now. He has been having a bunch of seizures since we have been here. I hope this rehab stay goes by quick because I am starting to get tired. I just want too be home now. It has been to long. Please continue to pray for my Superman and send positive thoughts. Thanks for all the love.

Happy new year!

Superman says happy new year to all his fans and may you all have a blessed new year. He has been doing pretty good the past few days. We will probably be heading to rehab within the next week or so. Superman is going to Kennedy kreiger for rehab. I only plan on staying for 2 weeks that should give them plenty of time to do what they need to get him back to himself. Please continue pray and send positive thoughts and thanks for all the prayers!