We are back at John Hopkins again for a cluster of seizures again. They are doing eeg on him. I had to give him the diastat to stop the seizures. Please say a prayer for Superman.
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Superman is finally home!!!
Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤
Superman has a fever again!
So, Superman spiked 102 fever early this morning. Now he has to have bloodwork and cultures done again maybe they will find something this time. My poor guy looks so sad. I hope they can figure out what is going on with my superman so he can go home. Thanks for all the prayers and well wishes. Not to mention that we are working on day 10 in the hospital. I am one tired mom. I just want to know what is going on with my Superman.
Superman is still in the hospital!
He has been having a rough morning. The seizures are not leaving him alone today. He was up all night, which keep me up too. Continued prayers and well wishes please for him to come home we are on day 9 being in the hospital.
Superman is still in the hospital!
He has infection going on somewhere just don’t from where yet. 102.00 fever overnight again. Blood pressure still low. His seizures are under control though.
So, what pic looks good?
Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.
How he feels about the Doctors!
Superman had an appointment at the doctors yesterday for bloodwork and the flu shot. He is getting his med levels checked, liver, and kidneys.
Superman is feeling better.
Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle. 
At the hospital with Superman! From 4:30am to 7:00am he had about 15 seizures and the last 2 of them was tonic clonic. So, we had to give him diastat and take him to hospital. Now he is resting. He has only had one seizure since we have been at the hospital.
Back to school for Superman!!!!!
Today was Supermans first day back to school since the summer break. His thoughts on going back to school are explained in the pictures. I know the pictures aren’t the best but this how Superman is. He doesn’t like his picture taken to much. I hope he has a great day. Love you, Superman.
thetruesuperman 