So we finally got to have Dylan’s celebration of life because the restrictions have been lifted. It was a beautiful day even with the heat and humidity. Lots of food, family and fun. We all got talk about our favorite memories of you my sweet angel! One of the most favorite memories was how you use to say a certain bad word and they always said you used it appropriately. We all sure do miss you more then words can say. I would love to say a big thank you to everyone who showed up today. We also would like to thank everyone for the donations for the epilepsy awareness foundation. We received 105.00 dollars for it. A big thank to my nephews fiance for the beautiful picture she made for us.
Category: epilepsy
Dylan’s balloon release!
It has been a year since you was taken away from us by this evil thing know as SUDEP. It doesn’t seem like it has been a year already. Everything was just rushed after you passed away. It just seemed like a dream that I relive everyday. I miss coming downstairs to your beautiful smile. Dylan you are truly missed and loved my sweet angel.
Birthday cards!
Dylan’s birthday was March 25! I forgot to post about these cards from his grandmother’s! Thank you both so much for the cards and beautiful words for our Superman. We love you both so much appreciate everything you do for us.
Dylan’s birthday celebration and world epilepsy day!
Dylan birthday was on Thursday he would of turned 18 but he lost his battle with epilepsy due to SUDEP on April 24,2020. Next month will be a year without my sweet angel. Things are hard without you here. We all love and miss you so much Dylan. You brought so much joy to our lives. Not one day goes by without you in our hearts. We celebrated your birthday at one of your favorite places to eat and that was the Outback. We got burgers for you sweetheart! Some of the pictures are from world epilepsy day.
Dylan’s Birthday!
My sweet Dylan’s birthday in on Thursday and it is going to be one of the hardest days since he passed away. He should still be here but this thing called SUDEP stole his life from him and those that loved him. We sure do miss you Dylan. Not one day goes by without thinking about you. Some days are harder then others but we manage to get through with all the love you left in our hearts. You received a birthday card the other day. It some dinosaur stickers in it.
Halloween!
Halloween was one of Dylan’s favorite holidays. So in his memory I made these pumpkins. Superman colors and purple for epilepsy.
Sunflower garden!
We go to the sunflower garden every year. This year Dylan was supposed to go with us since he got his ne wheelchair. But he passed away in April due SUDEP. He still made it to the sunflower garden today. Just not the way we thought. It turned out to a beautiful day!
Dylan as Superman!
His older brother had this made for the shelf with his urn. I think they did an awesome job on it.
Something new for Superman’s garden!
I got this made for the garden! It is smaller than I expected. But it turned out beautiful.
My beautiful blanket!
Dylan’s big brother Dacota had this made for me. It is a beautiful gift and memory I will treasure always. I love it. I can’t believe tomorrow will be three months already. It seems like yesterday we said goodbye to our Superman. We love you Dylan and miss you so much.
thetruesuperman 