Category: seizures

Bus training!

The bus is coming to the house tomorrow to train me on how to put Dylan on the bus. I don’t think I have a problem putting him on the bus. I have a problem with the bus aids who just stand there and do nothing. They should already be trained to handle special needs children since they are working on a bus that transports special needs children.

I.E.P Meeting

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Yesterday was Dylan’s IEP meeting and it was no fun for either of us. The meeting was supposed to start at 2 but, that didn’t happen because we had to wait for some of the attendees to show up. First of all, we didn’t even begin the IEP meeting, because they are still stuck on the fact that they think it would be best for Dylan to ride the bus in a wheelchair for his safety. My thoughts on that are NO WAY he is not riding the bus in a wheelchair because he is mobile. Dylan is not in a wheelchair at home so why would I want him transported to school in a wheelchair. They are claiming it is for safety measures for him and myself. I fell that they just don’t want to deal with Dylan because he can be a bit difficult at times. We can’t forget that Dylan is a fourteen-year-old boy going through puberty. So with that being said, In my opinion, he his just being a typical teenager. The one good thing that came out of the meeting was that Dylan will be reevaluated before the IEP meeting.

Bath time with Dylan/ being sick!

The bath part is easy with him, it’s afterwards that is the problem.  When his bath is over he just wants to lay in the tub and do nothing. So, I have to struggle to get him out. Then we go in the room to get him dressed and thats when the fun begins. He does not like to cooperate with you at all. By the time I’m done getting him dressed I’m soaking wet with sweat. Not mention he has been home sick all week, with this cold that has been going around. So, I’m one tired mommy this week. I told him he has to go back tomorrow and I don’t think he liked the idea to much. I have to catch up on my school work too. I love you Dylan my Superman!❤

Aggravation!

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This guy right here is hitting puberty and becoming a typical teenage boy by not wanting to do anything. The school is after me again to put him in a wheelchair because he will not walk off the bus. I told the lady on the phone that he was walking on the bus because, I will put him on the bus and they can use a wheelchair to get him off but, that is not good enough for them, they want to come out Monday to watch him get on the bus. I am sticking to what I said because I believe if he gets in a wheelchair he won’t want to do anything again. He needs to get up and move around so the wheelchair is a no go.

Hospital Visit!

So yesterday Superman went to the hospital from school because they said he had a seizure that lasted longer then 5 minutes. They also gave him his rescue meds that’s another reason why he was taken to the hospital so he could be monitored.  The hospital that he was taken to I’m not a fan of at all because of past issue’s. I have to say they gave him outstounding care yesterday.

Taken while at the hospital. 

Neurologist  appointment 💟

Dylan went to the neurologist On Wednesday and she raised his vimpat and lowered his keppra. His neurologist also referred him to the cerebral palsy clinic. It’s about time somebody referred him because he also has cp but hasn’t been seen for that in awhile. We are hoping they determine if he needs braces or not to help him with walking. Tried to get a few pictures of him smiling but he wasn’t trying to smile for me.

Being poor! 

Everyone knows my Superman has a seizure disorder and the heat can bring on more seizures. On one of the hottest days of summer, my air conditioner decides to quit working. That is not good for Superman because the heat is like kryptonite for him. As a parent, it is one of the worst feelings in the world not being able to fix the problem for him.