Not good news!!!

Superman has to be put on a ventilator to help him breathe now. He is having hard time breathing because of the seizures medications he has been given to control them. They are placing a central line and al line for needed medication.

Superman did not have a good night!

He did not have good night. He seized all night in his sleep. He is so many different medications right now. Hopefully they start to work on him. So they don’t have to put him on a ventilator.

Superman is being admitted!

He is in sub clinical status right now. That means he is having seizures but you can’t see them.

Back at the hospital again!

We are back at John Hopkins again for a cluster of seizures again. They are doing eeg on him. I had to give him the diastat to stop the seizures. Please say a prayer for Superman.

Superman is finally home!!!

Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤

Superman has a fever again!

So, Superman spiked 102 fever early this morning. Now he has to have bloodwork and cultures done again maybe they will find something this time. My poor guy looks so sad. I hope they can figure out what is going on with my superman so he can go home. Thanks for all the prayers and well wishes. Not to mention that we are working on day 10 in the hospital. I am one tired mom. I just want to know what is going on with my Superman.

Superman is still in the hospital!

He has been having a rough morning. The seizures are not leaving him alone today. He was up all night, which keep me up too. Continued prayers and well wishes please for him to come home we are on day 9 being in the hospital.

Superman is still in the hospital!

He has infection going on somewhere just don’t from where yet. 102.00 fever overnight again. Blood pressure still low. His seizures are under control though.

So, what pic looks good?

Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.