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Epilepsy is not a joke!!!

For anyone who thinks epilepsy is a joke. This is proof that it is not a joke. Superman needs prayers right now. So please continue to pray for him.

Superman has to be put on a ventilator to help him breathe now. He is having hard time breathing because of the seizures medications he has been given to control them. They are placing a central line and al line for needed medication.

Superman did not have a good night!

He did not have good night. He seized all night in his sleep. He is so many different medications right now. Hopefully they start to work on him. So they don’t have to put him on a ventilator.

Superman is being admitted!

He is in sub clinical status right now. That means he is having seizures but you can’t see them.

Superman is finally home!!!

Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤

Superman has a fever again!

So, Superman spiked 102 fever early this morning. Now he has to have bloodwork and cultures done again maybe they will find something this time. My poor guy looks so sad. I hope they can figure out what is going on with my superman so he can go home. Thanks for all the prayers and well wishes. Not to mention that we are working on day 10 in the hospital. I am one tired mom. I just want to know what is going on with my Superman.

Still in the hospital!!

My baby is not having a good day. The seizures are back to back to back again!

So, what pic looks good?

Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.

At the hospital with Superman! From 4:30am to 7:00am he had about 15 seizures and the last 2 of them was tonic clonic. So, we had to give him diastat and take him to hospital. Now he is resting. He has only had one seizure since we have been at the hospital.

EEG

Superman had a 4-hour EEG Friday. It was fun trying to keep him from pulling the electrodes off his head. We will have the results in 2 to 3 weeks. He also started a new medication on Sunday. The medication is called Onfi. So far the side effects have been mild.