Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤
He has been having a rough morning. The seizures are not leaving him alone today. He was up all night, which keep me up too. Continued prayers and well wishes please for him to come home we are on day 9 being in the hospital.
My baby is not having a good day. The seizures are back to back to back again!
Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.
Superman had a 4-hour EEG Friday. It was fun trying to keep him from pulling the electrodes off his head. We will have the results in 2 to 3 weeks. He also started a new medication on Sunday. The medication is called Onfi. So far the side effects have been mild.
Superman was at a neurology appointment while taking the pictures. He is getting better at looking at the camera.
Superman had to his mom mom Ruth a Happy 70th Birthday!!!
So his sister came home with Dunkin Donuts coffee the other day and Superman always attacks her for it. He loves his coffee. This is the result of him drinking coffee.
The bath part is easy with him, it’s afterwards that is the problem. When his bath is over he just wants to lay in the tub and do nothing. So, I have to struggle to get him out. Then we go in the room to get him dressed and thats when the fun begins. He does not like to cooperate with you at all. By the time I’m done getting him dressed I’m soaking wet with sweat. Not mention he has been home sick all week, with this cold that has been going around. So, I’m one tired mommy this week. I told him he has to go back tomorrow and I don’t think he liked the idea to much. I have to catch up on my school work too. I love you Dylan my Superman!❤
thetruesuperman 