He has infection going on somewhere just don’t from where yet. 102.00 fever overnight again. Blood pressure still low. His seizures are under control though.

He has infection going on somewhere just don’t from where yet. 102.00 fever overnight again. Blood pressure still low. His seizures are under control though.


Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.


Superman had an appointment at the doctors yesterday for bloodwork and the flu shot. He is getting his med levels checked, liver, and kidneys.
Dylan is feeling a little better today. He is still having seizures though. They are not as frequent as they were yesterday. Maybe they had something to do with the weather we are having today. I feel like the barometric pressure has some kind of an effect on his seizures. These past few days have been a little rough here with the car being out of commission and having to take Dylan to the hospital. We have been relying on friends and family for rides everywhere. We already had to cancel one of Dylan’s appointments. Our problem is not having the money to fix the vehicle. 

Superman had a 4-hour EEG Friday. It was fun trying to keep him from pulling the electrodes off his head. We will have the results in 2 to 3 weeks. He also started a new medication on Sunday. The medication is called Onfi. So far the side effects have been mild.


Superman was at a neurology appointment while taking the pictures. He is getting better at looking at the camera.





Superman had to his mom mom Ruth a Happy 70th Birthday!!!





