The Lombard puncture showed no sign of infection. Today the plan is to wean him down on the phenobarbital so he can start showing some brain function. Also his is going to have an MRI at some point today. Please keep the prayers coming because my Superman needs all the prayers he can get. Thanks to everyone for all the prayers and positive thoughts.
Lombard puncture and MRI to rule out infection around the brain. The CT scan some questionable spots.
They have in a sedative coma to keep the seizures under control. They also told me it is to give his brain a rest. Remember he came to hospital in sub clinical status. The plan for today he may have an MRI not sure about that yet. I will let everyone know more later. Thanks for all the prayers and positive vibes.💜💜
For anyone who thinks epilepsy is a joke. This is proof that it is not a joke. Superman needs prayers right now. So please continue to pray for him.
Superman has to be put on a ventilator to help him breathe now. He is having hard time breathing because of the seizures medications he has been given to control them. They are placing a central line and al line for needed medication.
He is in sub clinical status right now. That means he is having seizures but you can’t see them.
We are back at John Hopkins again for a cluster of seizures again. They are doing eeg on him. I had to give him the diastat to stop the seizures. Please say a prayer for Superman.
Did they even take different pictures? I don’t think they did! They all look the same to me. I think they just copied and pasted the pictures.
Superman had a 4-hour EEG Friday. It was fun trying to keep him from pulling the electrodes off his head. We will have the results in 2 to 3 weeks. He also started a new medication on Sunday. The medication is called Onfi. So far the side effects have been mild.
thetruesuperman 