Dylan even rolls his eyes now waiting for the lift to come down. This is so ridiculous having to wait to put him in a wheelchair he doesn’t even need because he walks. They had trouble with the lift this morning. We had to wait while they fixed it. So me and Dylan was standing at the door to come out and the bus driver said take your time because they are having a problem with the lift. Dylan heard her say that and he rolled his eyes. So I believe he is getting fed up with the crap we have to deal with on a daily basis.
Category: heroes
Kennedy Krieger visit!
Dylan was acting silly at his VNS appointment. He thought is was okay to eat the paper off the waiting table. Then he posed for a picture laying on the table after he tore the paper all up. The last picture he was laying on a couch in the waiting area.
VNS Battery Change
This guy has to have his battery changed again in his VNS. He went for an appointment today and the VNS therapist could not even get a reading on it so they are going to change the whole thing out to a newer model that detects an increase in his heartbeat and it will zap the seizure or lesson the seizure. He goes next Tuesday to have it changed. So keep him your prayers.
Dylan got a boo boo!
A couple a week’s ago Dylan feel and busted his chin open. We spent the morning at the hospital and all they did was glue it.
Letter from Santa
Dylan received a letter from Santa Saturday. Thanks so much Santa. I was a really good boy this year.
Thanksgiving
Thanksgiving day Dylan sat patiently waiting to eat his turkey dinner. He was so happy because he was doing one of his favorite things.(eating) Sorry, it’s been so long since I’ve posted, but I have been busy finishing up my classes. The best part about Thanksgiving was that we had a new stove to cook the turkey in.
Question
This is to do with my son Dylan who has epilepsy. The school wants to put him in a wheelchair just to transport him back and forth to school. I’m the one who has to put him on the bus in the morning and it is not an easy task. The thing is he can walk and I’m not allowing it to happen. They claim it is for safety concerns but we all know they don’t want to deal with Dylan because he can be difficult sometimes but is expected from a fourteen-year boy. I have never been told he needs to be in a wheelchair by any of the doctors he has been to. So my question to you is do you think he should be put in a wheelchair?
Bus training!
The bus is coming to the house tomorrow to train me on how to put Dylan on the bus. I don’t think I have a problem putting him on the bus. I have a problem with the bus aids who just stand there and do nothing. They should already be trained to handle special needs children since they are working on a bus that transports special needs children.
I.E.P Meeting
Yesterday was Dylan’s IEP meeting and it was no fun for either of us. The meeting was supposed to start at 2 but, that didn’t happen because we had to wait for some of the attendees to show up. First of all, we didn’t even begin the IEP meeting, because they are still stuck on the fact that they think it would be best for Dylan to ride the bus in a wheelchair for his safety. My thoughts on that are NO WAY he is not riding the bus in a wheelchair because he is mobile. Dylan is not in a wheelchair at home so why would I want him transported to school in a wheelchair. They are claiming it is for safety measures for him and myself. I fell that they just don’t want to deal with Dylan because he can be a bit difficult at times. We can’t forget that Dylan is a fourteen-year-old boy going through puberty. So with that being said, In my opinion, he his just being a typical teenager. The one good thing that came out of the meeting was that Dylan will be reevaluated before the IEP meeting.
Bath time with Dylan/ being sick!
The bath part is easy with him, it’s afterwards that is the problem. When his bath is over he just wants to lay in the tub and do nothing. So, I have to struggle to get him out. Then we go in the room to get him dressed and thats when the fun begins. He does not like to cooperate with you at all. By the time I’m done getting him dressed I’m soaking wet with sweat. Not mention he has been home sick all week, with this cold that has been going around. So, I’m one tired mommy this week. I told him he has to go back tomorrow and I don’t think he liked the idea to much. I have to catch up on my school work too. I love you Dylan my Superman!❤
thetruesuperman 