He did not have good night. He seized all night in his sleep. He is so many different medications right now. Hopefully they start to work on him. So they don’t have to put him on a ventilator.

He did not have good night. He seized all night in his sleep. He is so many different medications right now. Hopefully they start to work on him. So they don’t have to put him on a ventilator.

We are back at John Hopkins again for a cluster of seizures again. They are doing eeg on him. I had to give him the diastat to stop the seizures. Please say a prayer for Superman.

My baby is not having a good day. The seizures are back to back to back again!

He has infection going on somewhere just don’t from where yet. 102.00 fever overnight again. Blood pressure still low. His seizures are under control though.


We had a surprise party for Jeff it was his 50th Birthday. He received a few joke gifts. One was a cane filled with different things on Superman posed with the glasses from the cane.

So his sister came home with Dunkin Donuts coffee the other day and Superman always attacks her for it. He loves his coffee. This is the result of him drinking coffee.
The surgery went well. By the time got to go back to recovery my little Superman was awake. He was ready to go home after he drank his apple juice. Now time to go home and rest.


So yesterday Superman went to the hospital from school because they said he had a seizure that lasted longer then 5 minutes. They also gave him his rescue meds that’s another reason why he was taken to the hospital so he could be monitored. The hospital that he was taken to I’m not a fan of at all because of past issue’s. I have to say they gave him outstounding care yesterday.

Taken while at the hospital.
