He did not have good night. He seized all night in his sleep. He is so many different medications right now. Hopefully they start to work on him. So they don’t have to put him on a ventilator.
Tag: autism
Superman is being admitted!
He is in sub clinical status right now. That means he is having seizures but you can’t see them.
Back at the hospital again!
We are back at John Hopkins again for a cluster of seizures again. They are doing eeg on him. I had to give him the diastat to stop the seizures. Please say a prayer for Superman.
Superman is finally home!!!
Superman finally got released today. Don’t he looked thrilled to be home. I am one happy mom, but exhausted though. I need at least 10 hours of sleep. So, we still never found out the cause of all the seizures. All the test came back negative. The not knowing the cause is scary but hopefully everything is under control now. Thanks for all the prayers and well wishes for Superman. ❤
Superman has a fever again!
So, Superman spiked 102 fever early this morning. Now he has to have bloodwork and cultures done again maybe they will find something this time. My poor guy looks so sad. I hope they can figure out what is going on with my superman so he can go home. Thanks for all the prayers and well wishes. Not to mention that we are working on day 10 in the hospital. I am one tired mom. I just want to know what is going on with my Superman.
Superman is still in the hospital!
He has been having a rough morning. The seizures are not leaving him alone today. He was up all night, which keep me up too. Continued prayers and well wishes please for him to come home we are on day 9 being in the hospital.
Sunflower!
Some cute pictures of Dylan!!!!
Dylan got the superman hat for Christmas and he got the new Maraca. It is hard to buy stuff for Dylan because he has different needs then most children his age. He likes to spin stuff, like the old house phone he loves play with.
Friends
With the all the news about the autistic boy not having friends. I know that feeling all too well for my son Dylan. He doesn’t have friends and probably doesn’t even know what that means. The only friends he really needs is his family. He has that with his older brother and sister. I can absolutely say they both love him with all their hearts. He attends a special school with other children like him or worse off than him. I know some of the children that attend his school know what friendship is, but for most of the children, they can’t understand that concept. That doesn’t mean they don’t need friends too. I know his teachers love him also. The definition of friend is –a person whom one knows and with whom one has a bond of mutual affection, typically exclusive of sexual or family relations. With that being said, I’m not looking for anybody to feel sorry him, because I know he is one of the happiest people I know most of the time. He can have his bad days just like anybody can.
New pajamas
Dylan likes his new pajamas!
thetruesuperman 