Category: VNS

Wheelchair

Dylan even rolls his eyes now waiting for the lift to come down. This is so ridiculous having to wait to put him in a wheelchair he doesn’t even need because he walks. They had trouble with the lift this morning. We had to wait while they fixed it. So me and Dylan was standing at the door to come out and the bus driver said take your time because they are having a problem with the lift. Dylan heard her say that and he rolled his eyes. So I believe he is getting fed up with the crap we have to deal with on a daily basis.

VNS Battery Change

This guy has to have his battery changed again in his VNS. He went for an appointment today and the VNS therapist could not even get a reading on it so they are going to change the whole thing out to a newer model that detects an increase in his heartbeat and it will zap the seizure or lesson the seizure. He goes next Tuesday to have it changed. So keep him your prayers.20171228_173018.jpg

Question

This is to do with my son Dylan who has epilepsy. The school wants to put him in a wheelchair just to transport him back and forth to school. I’m the one who has to put him on the bus in the morning and it is not an easy task. The thing is he can walk and I’m not allowing it to happen. They claim it is for safety concerns but we all know they don’t want to deal with Dylan because he can be difficult sometimes but is expected from a fourteen-year boy. I have never been told he needs to be in a wheelchair by any of the doctors he has been to. So my question to you is do you think he should be put in a wheelchair?

Bath time with Dylan/ being sick!

The bath part is easy with him, it’s afterwards that is the problem.  When his bath is over he just wants to lay in the tub and do nothing. So, I have to struggle to get him out. Then we go in the room to get him dressed and thats when the fun begins. He does not like to cooperate with you at all. By the time I’m done getting him dressed I’m soaking wet with sweat. Not mention he has been home sick all week, with this cold that has been going around. So, I’m one tired mommy this week. I told him he has to go back tomorrow and I don’t think he liked the idea to much. I have to catch up on my school work too. I love you Dylan my Superman!❤

Hospital Visit!

So yesterday Superman went to the hospital from school because they said he had a seizure that lasted longer then 5 minutes. They also gave him his rescue meds that’s another reason why he was taken to the hospital so he could be monitored.  The hospital that he was taken to I’m not a fan of at all because of past issue’s. I have to say they gave him outstounding care yesterday.

Taken while at the hospital. 

Neurologist  appointment 💟

Dylan went to the neurologist On Wednesday and she raised his vimpat and lowered his keppra. His neurologist also referred him to the cerebral palsy clinic. It’s about time somebody referred him because he also has cp but hasn’t been seen for that in awhile. We are hoping they determine if he needs braces or not to help him with walking. Tried to get a few pictures of him smiling but he wasn’t trying to smile for me.