So, originally we went to Kenndy Kreiger for the helmet sizing back in June and now it is December and still no helmet. Remember they sent the wrong one the first time and told me it would only be two weeks to send the replacement. So I called the Numotion yesterday the place that Kenndy Krieger does all their contracts with. They told me they are waiting for a certain person to get back to them with the measurements of the helmet, but shouldn’t they already have it.
Category: VNS
Epilepsy
Don’t forget that November is epilepsy awareness month. Let’s get the word out about epilepsy it needs more recognition so don’t forget to spread the word. 
Pictures of Dylan at school!!
Look at that smile!! He so handsome!!!
New neurologists
The best part of Dylan’s visit was his mood he was happy. His VNS was finally checked and in working order. The new neurologists attitude is that she knows what is best for our child. One of her questions for us was why is he on such a low dose of Keppra and we said with a higher dose of the medication he was unable to function properly. When he was on the higher dose of Keppra he just sat there and wouldn’t move or do anything. Maybe the next visit will be better. The office he goes to has a beautiful garden outside for families to enjoy.
Dylan made this at summer school!
He decided it looked better in pieces! They had to staple it together!
School Notes!!!!!
Daily News!!!!
Just a little update on Dylan and how he has been doing. He has been doing pretty good. He is still having seizures, but they don’t affect him as bad as they use to. He has been pretty cheerful and vocal as well. What I mean by being vocal is that he has been making more sounds. He also loves to stomp is feet. Not everybody’s children are the same and some children need more attention than others. Dylan is one of those children but that does not make him any less of a child. That just gives him more character and more to love. There are some people that would see having a child like Dylan as being a burden, but that is not the case for our family. Dylan is the heart of our family. He brings each one us joy every day and that just makes us love him even more. So for all of the people that see having a child with special needs as burden just remember they didn’t ask to be that way and they still need love too. Dylan had fun at school yesterday the zoo came to visit his school. He got to see some interesting animals. We also had some visitors over the weekend as well both our granddaughters were here for the weekend too. I don’t think Dylan enjoyed that too much.
The letter!!!!!
This letter is hilarious. I guess they think he will miraculous heal himself from CP, Triplication of chromosome 15, autistic behaviors, and epilepsy. That would be wonderful if it happened though.
Daily News!!!
By Terri King
Dylan has been in a wonderful mood. He has been up and running all over the house. Dylan has been out school since the 23rd for the winter break. I have a certain place I like to sit in the living room and Dylan likes to sit there as well because as soon as I move he jumps right in my seat.He has been really vocal here lately Jeff thinks he is trying to, say mom it does sound like it. I have been trying to get him to say I LOVE YOU. It would be nice to hear him say that again. Christmas eve he slept all day he didn’t wake up till Christmas day around 10:00. He is still having seizures and the recovery time is not as long he seems to bounce right back. I’m happy with the progress he has been making.
![20151224_194004 [379483]](https://dylanissuperman.com/wp-content/uploads/2015/12/20151224_194004-379483.jpg?w=840)
Daily News!!!!!
Sorry, it’s has been awhile since I written anything, but I have been busy finishing up my classes and spending time with my family. Dylan has been doing okay. He was sick for a few days with a head cold. They canceled his neurologists appointment on the November 17 and rescheduled it for December 8 and I am on the cancelation list as well. His seizures are still a big concern. The battery change in the VNS didn’t make a big difference in the duration time of the seizures. Dylan had a really bad seizure the other night because we gave him his medicine a little late. His eyes were fluttering and his whole body was so still and it seemed like it lasted forever. I really hate forgetting to give him his medicines. The petition is still gaining signatures we now have 84,180 signatures. We need this law passed so my son can start receiving the treatment I believe will stop his seizures. This is picture was taken after he had his bath.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health/c
thetruesuperman 