This guy has to have his battery changed again in his VNS. He went for an appointment today and the VNS therapist could not even get a reading on it so they are going to change the whole thing out to a newer model that detects an increase in his heartbeat and it will zap the seizure or lesson the seizure. He goes next Tuesday to have it changed. So keep him your prayers.
Tag: school
Letter from Santa
Dylan received a letter from Santa Saturday. Thanks so much Santa. I was a really good boy this year.
Thanksgiving
Thanksgiving day Dylan sat patiently waiting to eat his turkey dinner. He was so happy because he was doing one of his favorite things.(eating) Sorry, it’s been so long since I’ve posted, but I have been busy finishing up my classes. The best part about Thanksgiving was that we had a new stove to cook the turkey in.
Question
This is to do with my son Dylan who has epilepsy. The school wants to put him in a wheelchair just to transport him back and forth to school. I’m the one who has to put him on the bus in the morning and it is not an easy task. The thing is he can walk and I’m not allowing it to happen. They claim it is for safety concerns but we all know they don’t want to deal with Dylan because he can be difficult sometimes but is expected from a fourteen-year boy. I have never been told he needs to be in a wheelchair by any of the doctors he has been to. So my question to you is do you think he should be put in a wheelchair?
I.E.P Meeting
Yesterday was Dylan’s IEP meeting and it was no fun for either of us. The meeting was supposed to start at 2 but, that didn’t happen because we had to wait for some of the attendees to show up. First of all, we didn’t even begin the IEP meeting, because they are still stuck on the fact that they think it would be best for Dylan to ride the bus in a wheelchair for his safety. My thoughts on that are NO WAY he is not riding the bus in a wheelchair because he is mobile. Dylan is not in a wheelchair at home so why would I want him transported to school in a wheelchair. They are claiming it is for safety measures for him and myself. I fell that they just don’t want to deal with Dylan because he can be a bit difficult at times. We can’t forget that Dylan is a fourteen-year-old boy going through puberty. So with that being said, In my opinion, he his just being a typical teenager. The one good thing that came out of the meeting was that Dylan will be reevaluated before the IEP meeting.
Aggravation!
This guy right here is hitting puberty and becoming a typical teenage boy by not wanting to do anything. The school is after me again to put him in a wheelchair because he will not walk off the bus. I told the lady on the phone that he was walking on the bus because, I will put him on the bus and they can use a wheelchair to get him off but, that is not good enough for them, they want to come out Monday to watch him get on the bus. I am sticking to what I said because I believe if he gets in a wheelchair he won’t want to do anything again. He needs to get up and move around so the wheelchair is a no go.
First day of high school!
Superman Dylan starts his first day of high school today! I can’t believe it already. He was in a good mood this morning. I love you, Superman. I hope you have a great first day.
My handsome super guy!
He is looking to grown up. He’s not my little baby no more. He is so handsome. look at his mustache and chin hairs. Miss my baby. He has been doing good here lately. Superman has not been having that many seizures.
Shoes and a book
Dylan earned these shoes by walking all year in gym class. The book was from a lady that works at the school!!
Mother’s day present
This is my mother’s day present from my superman. I am posting about it now because I was in bed sick mother’s day weekend. I’m still not back to my normal self yet but i’m getting there. Superman has been doing pretty good here lately since his medicine was increased.
thetruesuperman 