Special Needs – Page 26 – thetruesuperman

Daily News!!!

By Terri King

Dylan has been in a wonderful mood. He has been up and running all over the house. Dylan has been out school since the 23rd for the winter break. I have a certain place I like to sit in the living room and Dylan likes to sit there as well because as soon as I move he jumps right in my seat.He has been really vocal here lately Jeff thinks he is trying to, say mom it does sound like it. I have been trying to get him to say I LOVE YOU. It would be nice to hear him say that again. Christmas eve he slept all day he didn’t wake up till Christmas day around 10:00. He is still having seizures and the recovery time is not as long he seems to bounce right back. I’m happy with the progress he has been making.

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Daily News!!!

By Terri King

Hello everyone, sorry it has been a while since I have written anything. Dylan has been doing wonderful lately. He is still having seizures, but they don’t seem to affect him as bad as they use to.The past few days he has been sick with another ear infection and head cold. He has been running a fever and not wanting to eat much which is unusual for him because he loves to eat.I need to find him a new pediatrician and somebody to put tubes in his ears and maybe he won’t get as many ear infections. He looks so sad laying on the couch watching sponge bob. I wish he would start feeling better soon because Christmas is right around the corner. My classes are finally done till next year.

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Daily News!!!!

Terri King

Dylan has been doing wonderful. He has been very verbal for the past few weeks and a lot more mobile as well. We took Dylan to get his haircut last week and he slept through the whole thing. I think it was the eatiest haircut he has ever had. He met his new neurologist yesterday and seems to approve of her. She seems to be open to new suggestions on how to treat his seizures. We also aprove of her too. We had really good talk on the CBD oil.

Daily News!!

By Terri King

Hello, everyone!! We had a wonderful Thanksgiving with family and friends. Dylan has been in a great mood the past few days. Dylan really enjoyed dinner. I have to say he enjoyed the mashed potatoes and gravy the most. He has been very vocal and animated the past few days. It sounds like he is saying bad words like b*tch. Our granddaughter has been staying with us for a couple days while her mom gives birth to her baby sister.She is beautiful her name is Everleigh 6lbs 9ozs. Dylan must be getting adjusted to her being here now because he isn’t just sleeping anymore.In fact the past few days he has been up till 3:00 and 4:00 in the morning.My house is a mess between the both of them.ofcourse he is still having seizures but not as many as he was having.

FB_IMG_1448744307920 — Everleigh the new addition to the family.

20151127_035059 — Dylan staying up till 3:00 am

Daily News!!!!!

Sorry, it’s has been awhile since I written anything, but I have been busy finishing up my classes and spending time with my family. Dylan has been doing okay. He was sick for a few days with a head cold. They canceled his neurologists appointment on the November 17 and rescheduled it for December 8 and I am on the cancelation list as well. His seizures are still a big concern. The battery change in the VNS didn’t make a big difference in the duration time of the seizures. Dylan had a really bad seizure the other night because we gave him his medicine a little late. His eyes were fluttering and his whole body was so still and it seemed like it lasted forever. I really hate forgetting to give him his medicines. The petition is still gaining signatures we now have 84,180 signatures. We need this law passed so my son can start receiving the treatment I believe will stop his seizures. This is picture was taken after he had his bath.

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https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health/c

Daily News!!!!

Terri King

Hi, everybody, it has been a beautiful week here in Maryland 70’s all week. Dylan had a rough couple of days with seizures and shaking a lot, but now he seems to be back to himself. He was all smiles this morning I hope he has a wonderful day at school.

This is a video someone shared to me via facebook. I found it interesting. This the is the cannabis oil we are trying to get for my son. It worked miracles for the little girl in the video. I feel the same way about all the different drug combinations as she did. the petition is still gaining signatures we now have 83,846 supporters.

Daily News!!!!

Terr King

Hi everyone, Dylan has been in a wonderful mood here lately. I hope it continues for awhile. November is epilepsy awareness month and the color to wear is purple to show your support. The petition is still doing pretty good we now have 83,719 signatures and it continues to grow. Dylan has been making some new sounds.He likes to sleep when he doesn’t want to do something. His seizures have been about the same mostly at night or when he is sleeping. We didn’t go trick or treating we stayed home and watched movies and I bought a big bag of candy for Dylan and his brother and sister. Dylan doesn’t like candy that much. We didn’t have any trick or treaters come to the house.

https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health?

Daily News!!!!

By Terri King

Hello everyone, Sorry it has been awhile since I have written anything. Dylan has been back at school for three days now after being out sick for a week with an ear infection and sinus infection, he seems to be pretty good. I had his I.E.P meeting yesterday everything went well.He will be attending summer school again this year.His physical therapy increased too. His seizures were really bad Sunday night he had about ten seizures just while he was sleeping. The next morning he seemed fine. The petition is doing great 83,222 signatures now. There is a meeting about law 97-15 hopefully the law will be passed.

https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health

Daily New!!!

Terri King

Good afternoon everyone, Dylan went back to school today after being home sick for two days with an ear infection and sinus infection.He was in a great good mood. I hope he has a wonderful day at school and no seizures too.The rally we went on Monday was to support patients use of medicinal cannabis ahead of a packed Anne Arundel County Council meeting.

The county’s seven-member legislative body held the first public hearing on a dueling set of bills that are aimed at regulating where medical marijuana facilities can operate — with one proposing stricter restrictions than the other.

A vote on both measures was delayed to the council’s Nov. 2 meeting — one because of significant amendments and the other held until an outcome on changes is finalized. Maybe in November we will hear some good news about the bill 97-15.We now have 75,972 supporters for our petition to legalize CBD oil and medical marijuana.I put a link to the article about Monday night if anybody wants to read it.

https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health?

http://www.capitalgazette.com/news/government/ph-ac-cn-marijuana-rally-council-1020-20151019-story.html

Daily News!!!

Terri King

Good afternoon everyone sorry it’s been a while since I have written anything. But I have been busy with my classes and taking care of my family. Dylan has been sick for a few days along with his older brother. They both went to the doctors today and both of them have ear infections and sinus infections. My poor little guy just wants to sleep when he is sick. You can always tell when he sick because the seizures increase.We are going to a rally tonight for MEDICAL CANNABIS AND HEARING IN ANNE ARUNDEL COUNTY. We now have 70,694 signatures on our petition to get the CBD oil legalized here in Maryland. If anybody would like to join us the address is 44 Calvert St, Annapolis, Maryland 2140

https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health

https://www.gofundme.com/beast