This guy has to have his battery changed again in his VNS. He went for an appointment today and the VNS therapist could not even get a reading on it so they are going to change the whole thing out to a newer model that detects an increase in his heartbeat and it will zap the seizure or lesson the seizure. He goes next Tuesday to have it changed. So keep him your prayers.
Tag: children
Thanksgiving
Thanksgiving day Dylan sat patiently waiting to eat his turkey dinner. He was so happy because he was doing one of his favorite things.(eating) Sorry, it’s been so long since I’ve posted, but I have been busy finishing up my classes. The best part about Thanksgiving was that we had a new stove to cook the turkey in.
Question
This is to do with my son Dylan who has epilepsy. The school wants to put him in a wheelchair just to transport him back and forth to school. I’m the one who has to put him on the bus in the morning and it is not an easy task. The thing is he can walk and I’m not allowing it to happen. They claim it is for safety concerns but we all know they don’t want to deal with Dylan because he can be difficult sometimes but is expected from a fourteen-year boy. I have never been told he needs to be in a wheelchair by any of the doctors he has been to. So my question to you is do you think he should be put in a wheelchair?
First day of high school!
Superman Dylan starts his first day of high school today! I can’t believe it already. He was in a good mood this morning. I love you, Superman. I hope you have a great first day.
Mother’s day present
This is my mother’s day present from my superman. I am posting about it now because I was in bed sick mother’s day weekend. I’m still not back to my normal self yet but i’m getting there. Superman has been doing pretty good here lately since his medicine was increased.
Doctors Visit
This handsome guy right here had his yearly checkup last week. He is growing like a weed. He is 106pds and 5’2′ now. He wasn’t enjoying the visit too much he wanted to leave. What surprised me the most was he just sat there and let them draw his blood without fighting them.
Dylan’s birthday celebration!!!!
My little superhero slept through his whole party. He would not get up for anyone. He probably wouldn’t have slept through the party if we didn’t decide to wake him up at midnight to sing happy birthday to him. He would not go back to sleep after that. He woke after everybody left and ate some meatballs and pizza bites. 
Somebody has a birthday tommorrow!!!!!
How many happy birthday wishes can we get for him!!!!!
Bowling
We went to family bowling night about two weeks ago. Dylan was not really in the mood for it. We stayed and played one game of bowling. Dylan had a bowel movement so my husband took him out to the car to change him. We had already put in for the raffles so we waited for the drawings and we won a bowling party.
Sneaky
Dylan was in the living room the other day and it got real quiet, so we went and checked on him. He was sitting in their playing with gum. My daughter had left her pack of gum on the table and he thought it would be okay to play with it. We usually check everything out and make sure we don’t leave anything on the tables that he can get. Luckily we caught him in time so he couldn’t make a big mess with it.
thetruesuperman 