Daily News!!

By

Terri King

Dylan has remained in a wonderful mood the past few days. He is still continuing to have seizures, but the recovery time hasn’t been that long. He has been able to get right back up and continue with what he was doing. It makes me happy to see him in these kinds of moods. It’s hard watching your twelve-year-old son not able to do anything for himself except feed himself and drink on his own. Before all the seizures and all the medications, he was learning to do all types of things like using the bathroom. Dylan was able to sing all sorts of songs. The bathing part is difficult for me now because he is going through puberty and becoming a young man now.

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https://www.change.org/p/lawrence-hogan-maryland-state-house-legalizing-cbd-oil-in-maryland

Daily News!!

By

Terri King

Dylan has been in a wonderful mood the past few days. I love it when he has days like that.Those are the days that make me happy as well. His older brother has been really helpful with getting him ready for school on the mornings he doesn’t go to school.I think his seizures are slowing down since the weather is changing again, but he is still having a few. We have started a petition to Governer Hogan to legalize the CDB oil for the treatment of epilepsy and any other illness that it might help here in Maryland.

https://www.change.org/p/lawrence-hogan-maryland-state-house-legalizing-cbd-oil-in-maryland

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Daily News!!

By

Terri King

Dylan is in a wonderful mood today, he was so happy to see the bus this morning. I think that means he enjoys going to school or maybe he just likes riding the bus but, either way it’s great to see him in such a good mood. He is still having more seizures than normal. We have an appointment Tuesday with the new neurologists I hope she is as good as his old one. I wish it would cool off some, you got to love the weather in Maryland you never know what it’s going to be like.

Daily News!!

By

Terri King

Dylan has been having more seizures the past few days because it has been humid outside. As I said before that I think the weather has an effect on him  and how his seizures are.Sorry, it has been a while since I have written anything again, but I have been busy with life. I have been helping my daughter get stuff done for her new job working in schools with special needs children. This morning when I put Dylan on the bus and went to go back down the steps the driver shut the doors on me. I know she had to know I was still on there and all she says is I’m sorry. I’m glad I didn’t get hurt.Dylan has been working hard in school. I know this because he has been tired when he gets home from school. Dylan has some new toys he likes to play with.

This use to be one of Dylan's favorite songs.
This use to be one of Dylan’s favorite songs.
new toys
new toys

Daily News!!!

By

Terri King

Dylan has been in school for two days now and seems happier since he has got back in the routine of things.I guess I was right about him missing school. He seems to be worn out when he gets home from school because he lays on the couch watching TV till dinner is done.Dylan has had two great days of school so far and that makes me happy. He is still having seizures they seem to happen not long after he is given his medicine.

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First day back to school!!
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Second day back to school!

Daily News!!!!

By

Terri King

Dylan is still having seizures I don’t think any medicine is going work for him. I wish they would hurry up and get the laws passed to legalize the charlottes web here in Maryland. I have a feeling that is the only thing that would work for him. The VNS only helps with the nighttime seizures.Today we get to meet Dylan’s new teacher. I’ve heard good things about her. he will start school tomorrow. I’m glad we get to meet her before he starts. I’m sure he will learn to like her, but he will miss Mrs, Sherri and Mrs, Brook.

Daily News!!

By

Terri King

Dylan has been difficult the past few days he won’t keep his hands out of his diaper.I believe he is bored and misses the structure of school. I told him today I can’t wait till  school starts, but I’m not sure how happy he will be because he is getting a new teacher this year. I have heard good things about her so will see. It has been almost a week since the surgery and he is still having a few seizures.

Dylan says hi!!
Dylan says hi!!

Daily news!!

By

Terri King

Dylan got his first bath since the surgery, I bet he is feeling better now. He is doing great about keeping his hands off the incision. He is still having a few seizures here and there. School starts next week, I think Dylan is ready to go back because he gets bored staying home. I think he likes the structure of school.Dylan has been making a lot of news noises I’m not sure if it from the VNS or not. He has been laying on the floor playing with his toys and one of his favorite balls.

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Daily News!!!

By

Terri King

Dylan had surgery today to change the battery in his VNS.Dylan’s surgery went well today.He was only in surgery about an hour. They let one parent walk back with them and wait till they are out and then you get to give him a kiss on the cheek.We are home already and he is resting now. Dylan was up half the night I guess he thought it was party time.The doctor informed us that the battery was no good, so it’s  a good thing that we had it changed. He said it was already on and working. I’m so glad we don’t have to wait for the neurologist to turn it back on. Now hopefully he won’t have as many seizures.

Dylan sleeping before surgery.
Dylan sleeping before surgery.
I had to wear this to go to the operating room.
I had to wear this to go in the operating room.
Dylan sleeping in the car on the way home.
Dylan sleeping in the car on the way home.