By
Terri King
Dylan has been doing wonderful. He has been very verbal for the past few weeks and a lot more mobile as well. We took Dylan to get his haircut last week and he slept through the whole thing. I think it was the eatiest haircut he has ever had. He met his new neurologist yesterday and seems to approve of her. She seems to be open to new suggestions on how to treat his seizures. We also aprove of her too. We had really good talk on the CBD oil.
By Terri King
Hello, everyone!! We had a wonderful Thanksgiving with family and friends. Dylan has been in a great mood the past few days. Dylan really enjoyed dinner. I have to say he enjoyed the mashed potatoes and gravy the most. He has been very vocal and animated the past few days. It sounds like he is saying bad words like b*tch. Our granddaughter has been staying with us for a couple days while her mom gives birth to her baby sister.She is beautiful her name is Everleigh 6lbs 9ozs. Dylan must be getting adjusted to her being here now because he isn’t just sleeping anymore.In fact the past few days he has been up till 3:00 and 4:00 in the morning.My house is a mess between the both of them.ofcourse he is still having seizures but not as many as he was having.
Sorry, it’s has been awhile since I written anything, but I have been busy finishing up my classes and spending time with my family. Dylan has been doing okay. He was sick for a few days with a head cold. They canceled his neurologists appointment on the November 17 and rescheduled it for December 8 and I am on the cancelation list as well. His seizures are still a big concern. The battery change in the VNS didn’t make a big difference in the duration time of the seizures. Dylan had a really bad seizure the other night because we gave him his medicine a little late. His eyes were fluttering and his whole body was so still and it seemed like it lasted forever. I really hate forgetting to give him his medicines. The petition is still gaining signatures we now have 84,180 signatures. We need this law passed so my son can start receiving the treatment I believe will stop his seizures. This is picture was taken after he had his bath.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health/c
By
Terri King
Hi, everybody, it has been a beautiful week here in Maryland 70’s all week. Dylan had a rough couple of days with seizures and shaking a lot, but now he seems to be back to himself. He was all smiles this morning I hope he has a wonderful day at school.
This is a video someone shared to me via facebook. I found it interesting. This the is the cannabis oil we are trying to get for my son. It worked miracles for the little girl in the video. I feel the same way about all the different drug combinations as she did. the petition is still gaining signatures we now have 83,846 supporters.
By
Terr King
Hi everyone, Dylan has been in a wonderful mood here lately. I hope it continues for awhile. November is epilepsy awareness month and the color to wear is purple to show your support. The petition is still doing pretty good we now have 83,719 signatures and it continues to grow. Dylan has been making some new sounds.He likes to sleep when he doesn’t want to do something. His seizures have been about the same mostly at night or when he is sleeping. We didn’t go trick or treating we stayed home and watched movies and I bought a big bag of candy for Dylan and his brother and sister. Dylan doesn’t like candy that much. We didn’t have any trick or treaters come to the house.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health?
By Terri King
Hello everyone, Sorry it has been awhile since I have written anything. Dylan has been back at school for three days now after being out sick for a week with an ear infection and sinus infection, he seems to be pretty good. I had his I.E.P meeting yesterday everything went well.He will be attending summer school again this year.His physical therapy increased too. His seizures were really bad Sunday night he had about ten seizures just while he was sleeping. The next morning he seemed fine. The petition is doing great 83,222 signatures now. There is a meeting about law 97-15 hopefully the law will be passed.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health
By
Terri King
Good afternoon everyone sorry it’s been a while since I have written anything. But I have been busy with my classes and taking care of my family. Dylan has been sick for a few days along with his older brother. They both went to the doctors today and both of them have ear infections and sinus infections. My poor little guy just wants to sleep when he is sick. You can always tell when he sick because the seizures increase.We are going to a rally tonight for MEDICAL CANNABIS AND HEARING IN ANNE ARUNDEL COUNTY. We now have 70,694 signatures on our petition to get the CBD oil legalized here in Maryland. If anybody would like to join us the address is 44 Calvert St, Annapolis, Maryland 2140
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health
By
Terri King
Good afternoon to everyone and I hope you are having a wonderful day.Dylan had a rough night.We didn’t get much sleep last night due to his multiple seizures during the night. But the good thing about it is he woke up in a great mood this morning. He was laying on the bed with a big smile on his face.I hope his day at school went well.It has been beautiful outside today for it being the first week of October. The petition is still gaining a lot of new signatures we now have 47,958. We are going to get this bill passed.
By
Terri King
Good afternoon just thought I would give you an update on how Dylan is. Dylan’s mood has been pleasant here lately. The only problem we have been having with him is that he’s been refusing to take his medicine and of course, the seizures.He’s like that crap doesn’t work anyways so why should I take it.I don’t think his drool medicine quit working because he has drool all over the house.I think will rectify that situation at the next doctors appointment. His next appointment is in November. We are still receiving signatures for our petition we have reached 46,906 so far. Again thanks to everyone that has signed.
By
Terri King
We now have 30,942 supporters who have signed the petition.That’s a lot of signatures and it is continuing to get supporters. I’m thankful to everyone who has signed it.Dylan has been in a good mood the past few days.I think he is trying to talk again we heard him say, baby the other day. Maybe that’s because I call him baby all the time. Yesterday when he came home from school he was very sleepy.He took a long nap he ended up sleeping all night and didn’t wake up till six the next the morning.He ready when he got up, though. I think it has something to with all the rain we have been getting here it makes me sleepy too. We had to wake him up long enough to give his medicine yesterday and as soon I gave to him he started having a seizure that lasted a minute.
thetruesuperman 