Dylan likes his new pajamas!
Tag: chromosome
Back to school today!
My Poor Baby!!!!!

This is the result after having a 30-second seizure . He thought he could get up right away and fell face first on the floor. He was fine a couple minutes later all smiles and ready for school. He is superman!!!!!
This Kid!!!!!
Dylan woke up early the other day and he hurt the tip of his nose somehow. The funny thing about it is he never cried one bit. We didn’t notice it till we woke up ourselves. It looked much worse than that. 
ENT VISIT
We’ll it didn’t go as planned, Dylan’s ears were fine at his visit. The doctor said everything has changed in the last 10 years. The new guidelines are you now have to have hearing, loss now. The doctor said Dylan’s hearing test shows that he is hearing fine. He said to come back in four months. These are some of the pictures I took at while waiting.
Dylan’s last of summer school!
New neurologists
The best part of Dylan’s visit was his mood he was happy. His VNS was finally checked and in working order. The new neurologists attitude is that she knows what is best for our child. One of her questions for us was why is he on such a low dose of Keppra and we said with a higher dose of the medication he was unable to function properly. When he was on the higher dose of Keppra he just sat there and wouldn’t move or do anything. Maybe the next visit will be better. The office he goes to has a beautiful garden outside for families to enjoy.
Summer School Notes!!!











