Our granddaughter is visiting us again! She loves her uncle Dylan! He was sleeping, but she wanted to hold his hand. I think Dylan is finally coming around to her!
Category: seizures
Dylan’s Party!!!
Dylan’s party was awesome!!!!!!! We had a lot of people show up. He slept through most of it because we gave him a bath not too long before the party and that must of made him feel relaxed. He got some nice gifts, but mostly he got cards with money. So now I will have to take him shopping. A few pictures from the party and pictures of the cards he got.
The letter!!!!!
This letter is hilarious. I guess they think he will miraculous heal himself from CP, Triplication of chromosome 15, autistic behaviors, and epilepsy. That would be wonderful if it happened though.
Notes from his teacher’s
A special gift for Dylan
One of my old friends from my neighborhood started sharing Dylan’s story with her thirteen years old son Nathan. Nathan was touched so much by Dylan and his story that he wrote him a letter and made him a Superman Design. He prays for Dylan on a daily basis, along with his parents. I just wanted to share this with everyone. Nathan thank you for thinking of Dylan and your beautiful gift. Thank you for all your prayers and good thoughts for Dylan. Thank you LouAnn Smith for your incredible love! May Almighty God bless you and your family tenfold! I Love you my friend
Daily News!!!!
By
Terri King
Dylan has been doing wonderful. He has been very verbal for the past few weeks and a lot more mobile as well. We took Dylan to get his haircut last week and he slept through the whole thing. I think it was the eatiest haircut he has ever had. He met his new neurologist yesterday and seems to approve of her. She seems to be open to new suggestions on how to treat his seizures. We also aprove of her too. We had really good talk on the CBD oil.
Daily News!!
By Terri King
Hello, everyone!! We had a wonderful Thanksgiving with family and friends. Dylan has been in a great mood the past few days. Dylan really enjoyed dinner. I have to say he enjoyed the mashed potatoes and gravy the most. He has been very vocal and animated the past few days. It sounds like he is saying bad words like b*tch. Our granddaughter has been staying with us for a couple days while her mom gives birth to her baby sister.She is beautiful her name is Everleigh 6lbs 9ozs. Dylan must be getting adjusted to her being here now because he isn’t just sleeping anymore.In fact the past few days he has been up till 3:00 and 4:00 in the morning.My house is a mess between the both of them.ofcourse he is still having seizures but not as many as he was having.
Daily News!!!!!
Sorry, it’s has been awhile since I written anything, but I have been busy finishing up my classes and spending time with my family. Dylan has been doing okay. He was sick for a few days with a head cold. They canceled his neurologists appointment on the November 17 and rescheduled it for December 8 and I am on the cancelation list as well. His seizures are still a big concern. The battery change in the VNS didn’t make a big difference in the duration time of the seizures. Dylan had a really bad seizure the other night because we gave him his medicine a little late. His eyes were fluttering and his whole body was so still and it seemed like it lasted forever. I really hate forgetting to give him his medicines. The petition is still gaining signatures we now have 84,180 signatures. We need this law passed so my son can start receiving the treatment I believe will stop his seizures. This is picture was taken after he had his bath.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health/c
Daily News!!!!
By
Terri King
Hi, everybody, it has been a beautiful week here in Maryland 70’s all week. Dylan had a rough couple of days with seizures and shaking a lot, but now he seems to be back to himself. He was all smiles this morning I hope he has a wonderful day at school.
This is a video someone shared to me via facebook. I found it interesting. This the is the cannabis oil we are trying to get for my son. It worked miracles for the little girl in the video. I feel the same way about all the different drug combinations as she did. the petition is still gaining signatures we now have 83,846 supporters.
Daily News!!!!
By
Terr King
Hi everyone, Dylan has been in a wonderful mood here lately. I hope it continues for awhile. November is epilepsy awareness month and the color to wear is purple to show your support. The petition is still doing pretty good we now have 83,719 signatures and it continues to grow. Dylan has been making some new sounds.He likes to sleep when he doesn’t want to do something. His seizures have been about the same mostly at night or when he is sleeping. We didn’t go trick or treating we stayed home and watched movies and I bought a big bag of candy for Dylan and his brother and sister. Dylan doesn’t like candy that much. We didn’t have any trick or treaters come to the house.
https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health?
thetruesuperman 