Category: Life

Friends

With the all the news about the autistic boy not having friends. I know that feeling all too well for my son Dylan. He doesn’t have friends and probably doesn’t even know what that means. The only friends he really needs is his family. He has that with his older brother and sister. I can absolutely say they both love him with all their hearts. He attends a special school with other children like him or worse off than him. I know some of the children that attend his school know what friendship is, but for most of the children, they can’t understand that concept. That doesn’t mean they don’t need friends too. I know his teachers love him also. The definition of friend is –a person whom one knows and with whom one has a bond of mutual affection, typically exclusive of sexual or family relations. With that being said, I’m not looking for anybody to feel sorry him, because I know he is one of the happiest people I know most of the time. He can have his bad days just like anybody can.

 

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ENT VISIT

We’ll it didn’t go as planned, Dylan’s ears were fine at his visit. The doctor said everything has changed in the last 10 years. The new guidelines are you now have to have hearing, loss now. The doctor said Dylan’s hearing test shows that he is hearing fine.  He said to come back in four months. These are some of the pictures I took at while waiting.

New neurologists

The best part of Dylan’s visit was his mood he was happy. His VNS was finally checked and in working order. The new neurologists attitude is that she knows what is best for our child. One of her questions for us was why is he on such a low dose of Keppra and we said with a higher dose of the medication he was unable to function properly.  When he was on the higher dose of Keppra he just sat there and wouldn’t move or do anything. Maybe the next visit will be better. The office he goes to has a beautiful garden outside for families to enjoy.20160727_152401

Finally

Dylan had his physical appointment today and guess what his ears are still red. He just got done taking a ten-day course of antibiotics. So now he has to start a new antibiotic. I’m glad we put talking to the doctor about seeing an ENT on the list because this kid keeps ear infections. We went straight home so I could make the appointments. The receptionist on the phone said he needs to have a hearing test done first, appointment scheduled already for the end of July. To speak with the doctor already scheduled for the beginning of August. So happy we are finally getting to see somebody so his poor ears can heal.