Tag: Govenor Larry Hogan

Movies!!!!

We took Dylan to Superman versus Batman on his birthday and I do believe he enjoyed himself. I can’t believe he was that quiet through the whole movie. His favorite parts of the movie were the fight scenes and the car chases.That’s a  boy for you.  So he had a wonderful birthday. Then we took him to his favorite place to eat which of course is the Outback. He loves the bread and the blooming onion. He was really lively when got there he ending up knocking over Dacota’s glass of water and spilling it all over him. So Dacota was mad the rest of dinner. Dylan couldn’t help it he was excited I guess.I’m posting  a couple new pictures taken at school. I love seeing him smile.

 

Dylan’s Party!!!

Dylan’s party  was awesome!!!!!!! We had a lot of people show up. He slept through most of it because we gave him a bath not too long before the party and that must of made him feel relaxed. He got some nice gifts, but mostly he got cards with money. So now I will have to take him shopping. A few pictures from the party and pictures of the cards he got.20160322_172239

 

 

Daily News!!!!

Dylan will be thirteen on March 25. They will be on spring at that time. So Dylan had a party at school today. He brought home a lot of presents from his teachers and friends at school. They spoil him too much. I just want to say a big thank you to everybody for all the wonderful gifts Dylan received. The best part was no seizures today.

 

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all the wonderful gifts
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Thanks for all the superman gifts!!!
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My handsome superman
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Hi is so handsome!!!!

 

 

Daily News!!!!

Dylan has been doing pretty good. His ear infection never healed from the last time. So my husband took him to Patient First this weekend and he still has an ear infection and now he is on antibiotics. We knew it wasn’t healed because he wasn’t acting his normal self. If he is sick or anything else is  wrong him his seizures will increase. I gave him a haircut this weekend  he looks so handsome.

 

Dylan’s new haircut
logo my son made

Daily News!!!

By Terri King

 

Dylan has been in a wonderful mood. He has been up and running all over the house. Dylan has been out school  since the 23rd for the winter break. I have a certain place I like to sit in the living room and Dylan likes to sit there as well because as soon as I move he jumps right in my seat.He has been really vocal here lately Jeff thinks he is trying to, say mom it does sound like it. I have been trying to get him to say I LOVE YOU. It would be nice to hear him say that again. Christmas eve he slept all day he didn’t wake up till Christmas day around 10:00. He is still having seizures and the recovery time is not as long he seems to bounce right back. I’m happy with the progress he has been making.

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Daily News!!!!

By

Terri King

Dylan has been doing wonderful. He has been very verbal for the past few weeks  and a lot more mobile as well. We took Dylan to get his haircut last week and he slept through the whole thing. I think it was the eatiest haircut he has ever had. He met his new neurologist yesterday and seems to approve of her. She seems to be open to new suggestions on how to treat his seizures. We also aprove of her too. We had really good talk on the CBD oil.

 

Daily News!!

By Terri King

Hello, everyone!! We had a wonderful Thanksgiving with family and friends. Dylan has been in a great mood the past few days. Dylan really enjoyed dinner. I have to say he enjoyed the mashed potatoes and gravy the most. He has been very vocal and animated the past few days. It sounds like he is saying bad words like b*tch. Our granddaughter has been staying with us for a couple days while her mom gives birth to her baby sister.She is beautiful her name is Everleigh 6lbs 9ozs. Dylan must be getting adjusted to her being here now because he isn’t just sleeping anymore.In fact the past few days he has been up till 3:00 and 4:00 in the morning.My house is a mess between the both of them.ofcourse he is still having seizures but not as many as he was having.

 

 

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Everleigh the new addition to the  family.
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Dylan staying up till 3:00 am

 

Daily News!!!!!

Sorry, it’s has been awhile since I written anything, but I have been busy finishing up my classes and spending time with my family. Dylan has been doing okay. He was sick for a few days with a head cold. They canceled his neurologists appointment on the November 17 and rescheduled it for December 8 and I am on the cancelation list as well. His seizures are still a big concern. The battery change in the VNS didn’t make a big difference in the duration time of the seizures. Dylan had a really bad seizure the other night because we gave him his medicine a little late. His eyes were fluttering and his whole body was so still and it seemed like it lasted forever. I really hate forgetting to give him his medicines. The petition is still gaining signatures we now have 84,180 signatures. We need this law passed so my son can start receiving the treatment I believe will stop his seizures. This is picture was taken after he had his bath.

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https://www.change.org/p/don-t-stand-in-the-way-of-my-son-s-health/c

Daily News!!!!

By

Terri King

Hi, everybody, it has been a beautiful week here in Maryland 70’s all week. Dylan had a rough couple of days with seizures and shaking a lot, but now he seems to be back to himself. He was all smiles this morning I hope he has a wonderful day at school.

This is a video someone shared to me via facebook. I found it interesting. This the is the cannabis oil we are trying to get for my son. It worked miracles for the little girl in the video. I feel the same way about all the different drug combinations as she did. the petition is still gaining signatures we now have 83,846 supporters.