Daily News!!!!!

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Dylan’s new helmets finally came yesterday. I got him two helmets, this time,one is a hard shell  and the other one is soft. We are still waiting on his new onesies to come. We had a great conversation with a wonderful lady named Janie from England. Her son is named Dylan also and they both have the same diagnosis. We talked about how similar they are and how they both seem to like the same things.

A special gift for Dylan

One of my old friends from my neighborhood started sharing Dylan’s story with her thirteen years old son Nathan. Nathan was touched so much by Dylan and his story that he wrote him a letter and made him a Superman Design. He prays for Dylan on a daily basis, along with his parents. I just wanted to share this with everyone. Nathan thank you for thinking of Dylan and your beautiful gift. Thank you for all your prayers and good thoughts for Dylan. Thank you LouAnn Smith for your incredible love! May Almighty God bless you and your family tenfold! I Love you my friend

Daily News!!!!

Dylan has been in a wonderful mood here lately. The schools have been closed for three days now, due the snowstorm that hit the east coast last week. I think Dylan is ready to go back to school because he is bored. My little superman loved the snow before all the seizures. We have a video of him from before the seizures of him playing in the snow and having a good time he was saying it’s snowing.  Now he doesn’t want anything to do with it. He is still having seizures but they haven’t been as bad as they used to be. I’m happy to see him up and about and happy.