A Journey of Next

When you’re on the journey of God’s next. The road is not always easy. You see God will take you through the wilderness where you’ll encounter all types of hardships. We quite often want to stay in the bondage of the old, because it is hard, but at least we know what we have. Many stay where they’re content, because it’s just easier that way. Most people are afraid to start a new journey, because they are afraid of the unknown, they’re afraid of the struggle before them. Many who do partake on a new journey is often met with what they believe to be unsurmountable odds. They cry out for food and water and safety, because at least where they were offered that to them. Where they’re headed is an unseen land and often the road is narrow and dark. We quite often travel through barren wastelands where there seems to be no promise of a new and brighter day. Quite often we climb hazardous mountains on our journey to the next; forging our way through the roughest terrain that we could ever imagine. We want it easy, but no greatness comes so cheaply. Greatness cost us everything. We want to learn our lessons without sacrifice without hardship, without going through the darkness. We want to sit atop of the apex and look out over the valley to see what awaits us on God’s journey of next. God knows that we can never learn what He is trying to teach us if we stay atop the mountain. He knows that the valleys and the deepest shadows are where we learn the most. We learn to trust, to wait, to hope to endure, through our deepest and darkest moments in our lives. A wise man knows that the journey through life is just that a journey. We were never meant to become content with where we are at, but look forward with hope to the next part of our journey. When life for me here has ended, I do not believe that my journey will end at death, but it will be the next leg of this journey that we are all on. We cannot see that side of eternity, but we look on with expectant hope that our journey to God’s next awaits us there.  Sometimes the journey is thrust upon us. We are taken out of our comfort zone and are forced to begin a new journey; not a journey we would have chosen for ourselves. 12 years ago Terri and I were forced upon a journey that I am sure that we would have never chosen for ourselves. We were young and inexperienced when Dylan was born. We were parents, but could have never imagined the journey that awaited us with Dylan. He has been our guide through this journey. We have learned so much along the way. I decided to go into special education, because of Dylan. I am no longer content with just teaching children with special needs. I now want to be able to do more for my son, other children and adults that have special needs. I want to be their voice, their advocate. I want to be a defender of the defenseless! I want to be able to fight for their rights. See the thing is when you’re on a journey, you get hungry. You need sustenance. You look forward to crawling and scraping through the wilderness, you know that shadows and darkness awaits you, but you also know that shadows cannot exist without light. That light is what keeps you going. You know when you reach the top of that mountain you have a meeting with the Almighty and he is giving you another set of marching orders to carry out! Then it’ll be onto the next journey! A wise man once said that a journey of a thousand miles begins with a single step. I say enjoy the journey.

The Real Superman Part XII

The Real Superman Part XII

By Jeff King

We began hearing a term called VNS. This procedure was supposed to be working miracles for people who suffered from intractable epilepsy. I didn’t even know what VNS was, let alone how it was done, so I began to research it. I went to the Epilepsy website and began to read about this new and innovative procedure that was helping tens of thousands of people who suffered from epilepsy. They termed this new procedure as, “the pacemaker for the brain” (Schachter, 2013). This device is placed under the skin on the left side of the chest. The wire runs to the Vagus nerve which is a part of the autonomic nervous system. This nerve controls functions of the body which are not under voluntary control. The neurologist sets the devices impulse to send a small jolt of electricity to the Vagus nerve. In theory this can stop a seizure from happening. You are also given a magnet that you can use for any onset signs of seizures, or when a seizure comes on. You placed the magnet over the stimulator outside the chest and in theory, it stops the seizure. You can learn more about it at http://www.epilepsy.com/learn/treating-seizures-and-epilepsy/devices/vagus-nerve-stimulation-vns. This sounded wonderful, a very promising weapon against seizures. The more I read about it as well as testimonies from patients and parents and family members of patients the more I liked it. My wife had also checked it out and we were determined to talk to Dr. Rubenstein about it.

On Dylan’s next appointment to see him he asked us how everything had been going for Dylan, we explained how Dylan just laid around very lethargic and was continuing to have up to 40 seizures a day even on the medicine. We asked him to help us order a special wheelchair for Dylan, because, I could no longer carry him around because, he was getting so heavy, plus he was dead weight. He agreed and put a request into Medicaid. He started talking about maybe introducing a new medication into the mix. Terri and I quickly cut him off and almost in unison said that we wanted to try the VNS on Dylan. He listened patiently and then said, “I couldn’t agree more.” I am glad that you both are very pro-active in Dylan’s health and you both are well informed. I definitely believe that he is an excellent candidate for this procedure.” We talked a little more about it and he gave us all the details about what to expect and what side effects could also occur with this procedure. We all came to the agreement that Dylan would be fitted with the VNS and we began to plan the date of his procedure. His surgery was set for December 22nd, 2011. Which was about three months away.

Medicaid had approved him for his wheelchair, which was great for us, because now we were able to go to the store and take Dylan in with us. Before that I would sit in the car with him while Terri went inside to do the grocery shopping, which was okay, but I believe it was better if Dylan was able to go into the stores too. I mean his life consisted entirely of laying around having seizures. He no longer watched any TV. He was just there. It sounds cold and harsh, but that’s the best way I can describe him. I can tell you as a father, I cried many tears as I watched him slowly disappear his whole personality was vanquished. It was a very sad and horrible existence that he was living. I thought about the Metallica song “One” “Darkness imprisoning me All that I see Absolute horror I cannot live I cannot die Trapped in myself Body my holding cell” (James Hetfield Lars Ulrich, 1993).

I thought how sad, his body was his holding cell! This made me weep hot tears of sorrow ran down my face! I was sure hoping that the VNS would deliver my son from that darkened abyss that he disappeared into.

When we got his wheelchair we decided to go shopping at our local grocery store. I got the chair out of the trunk and set it up. I got him out of the back seat and placed him in his chair. We went grocery shopping. He just sat there impassively, but at least he was out and about, so that was a good thing. We finished shopping and we go outside. I was pushing Dylan and Terri was pushing the shopping cart. There was a car blocking the handicap aisle that was in front of the store. Terri yelled out, “How rude!” The driver of the vehicle pulled up out of the way, but started cussing us out. I told the lady that she didn’t want to mess with my wife and that she was illegally parked there anyway. She got out of her car, but stood inside her car door and hurled insults at us. Then she says to me, “You’re not even a real man, because you couldn’t even create a whole child!” Man I was enraged, but Terri was twice as angry. She wanted to go after this vulgar extremely evil women, but she didn’t. She just walked away! What an offensive wicked thing she had said! I am not going to lie, I cursed her and said that one day, that she would reap what she had sown. She reaped hate she will definitely sow that same hate! This was just another of the many incidents we would have along this journey. The hate and the evil that spews from the mouth of people against people with special needs, children with special needs! I never hated anyone in my entire life, but as God is my witness, if that woman would have choked to death on her hateful words, I would have begun to cheer right then and there. Don’t get me wrong, I really don’t wish those type of things on anyone, but it was very hurtful. It just made me hurt for my son and I just couldn’t believe this woman would say such an ugly thing about a child. (To be continued.)

The Promise

This is just a little poem I wrote for my son Dylan, My son, my hero, my inspiration! I Love you!

The Promise
By Jeff King

I’d give you my eyes if you couldn’t see/ My heart is yours for eternity/ I give you my strength when your body grows weak/ and my voice is now yours since you cannot speak/I’d trade my whole life to give back your health/ To see you lively once more would be unspeakable wealth/ I’d give you my tears/ If they could take all your pain/ All my years would be yours and not wasted in vain/I promise you son that I would lay down my life/ To give you a chance would be worth sacrifice/ Though my years have been many and yours just a few/ I would give all I have left to you/