Daily News!!

By

Terri King

Dylan is feeling a lot better he still has a little bit of a cough.Dylan went back to school today. I hope he has a good day. I know his teachers will be glad to see him.Tomorrow is his last day of school. He had one seizure this morning it wasn’t a bad and he had a quick recovery.

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Daily News!!!

By

Terri King

Dylan is home sick again. I thought he was feeling better on Friday. He woke up Sunday morning running a fever. We went to the doctor’s they said he has a sinus infection and put him on the Z-pak. I hope he starts feeling better soon because he has been having a lot more seizures. He is not eating like his normal self either, so you know he is sick because he loves to eat.

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Daily News!!

By

Terri King

Dylan has been very tired today. He has been having a lot of seizures today. I think it is because he is still not over the sinus infection. In between the seizures, he finds time to get into stuff. I have a calendar hanging on the wall he likes to swing back and forth. I have been sick also with the same thing and not feeling like writing anything.

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Ode to Superman

This is a poem I am working on. I haven’t finished yet. I would actually like some feedback on it. It’s titled Ode to Superman

Ode to Superman

I watched him grow from a small child to struggle through so many things. So unlike any other boy. To wrestle just to make it through another day. He was born under a dark cloud, but his smile would ignite the sun and though his life is filled with shadows he will not cry one single tear.

The war he fights is his alone. He battles hard without a fear. With no concern with what tomorrow holds. He stays strong and carries on.

Carry on little Superman. On wings of hope you fly on high. No kryptonite can hold you down.  Spread your wings my hero fly.

The Real Superman Part XVI

By Jeff King

For a while Dylan did improve. He wasn’t having a lot of seizures and whenever he had them they were quick and he recovered pretty quickly, as if nothing even happened. We were able to successfully get him to where his helmet, but it was a hell of a fight to get him to do it. Every time we would put it on him, he would rip it off and throw it across the room. Most of the time he would smile about it. He knew what he was doing. In the end our perseverance won out and Dylan still wears a helmet today, but, man the struggle was real!

One early September day in 2014; right before school; Terri had just given Dylan a bath when a very freak accident occurred. Terri had a whole collection of brass and ceramic unicorns that she had collected since she was a child. Terri had just finished bathing him and put his helmet on. She was preparing to get him dressed. He had been running around the room like a Wildman, which by the way was normal for him when all of a sudden it happened. Dylan had an absence seizure and fell backwards hitting the shelf that housed all of Terri’s fine collectable unicorns. She called for me I was downstairs getting ready for work and I hear her scream my name, so I go flying up the stairs like a bat out of hell. There was blood everywhere. We lifted Dylan up off the floor and sure enough he was bleeding, but we weren’t sure from where. I quickly removed his helmet to examine him. That’s when we noticed that he had a small puncture wound in the back of his head, “But how?” we asked ourselves. He had his helmet on. Terri looked over at the shelf to examine the damage when she noticed a particular ceramic unicorn which was intact all except for the fact it was missing its horn. I picked up Dylan’s helmet off of the floor to reexamine it. It was then that I found the unicorns horn, it was wedged in a small hole that was created when Dylan fell on it. We cleaned him up and the mess and he stayed home from school that day.

Dylan has always found a way of destroying things; sometimes they were accident, while other times he would purposely destroy things. Here is a list of things that he has destroyed: Our semi new flat screen HD TV that we only had for a year. We had just finished paying the credit card off that we used to purchase it with. Dylan had an absence seizure and fell head first into it. We had to borrow a small TV from my sister-in-law until we were able to buy a new one. He has broken 4 sets of lamps, by just pushing them off the end tables. It takes him several times of knocking them off, but eventually he is successful. We always try to correct him, but he just doesn’t seem to understand. He has torn up several sets of living room and dining room furniture as well. He just ripped the fabric off one of our sets of living room furniture. We bought nice leather furniture and he was good with it. He never once tried to tear that set up, but over the years from wear and tear it eventually wore out, so we waited until tax time 2014 and bought this furniture with cash. It cost us about 1300 dollars. It wasn’t made very well and for some reason Dylan decided that he wanted to tear it up. It was fake leather and Dylan had it destroyed in less than 4 months. We just bought another leather set on credit and he seems just fine with it. We purchased a dining room set a few years ago. The table was very nicely made and we still have it today, but we have went through three sets of chairs. Dylan would go out in the dining room and knock the chairs over. He reminds me of the Tasmanian Devil from the Warner Brothers cartoons. He has destroyed pictures, which some he has stood on the furniture and ripped them off the walls. He ripped Terri’s dream catchers up. We caught him several times with the feathers still in his mouth. Like a cat that just ate the canary found with the evidence still in his mouth. It sounds funny, but at the time that he is doing these things, we don’t find it very funny. We have tried to stop him several times, but he is like a tornado going through a room, or a bull in a china shop. No matter how many times we stop him and sit him down and tell him no, he will wait until an opportunity arises and he will go tear things up.

He has torn up our plants several times. Just recently he was playing in his toy box and I was watching TV when he came out into the living room and his face and hands were covered in dirt. He had been into Terri’s plants. I had to clean him up as well as the mess he left for me. He came in and looked at me to show me how proud he was of himself. He has ripped up my other children’s homework, my college papers. My niece gave him the name the Ripper, because when we were visiting them one day he had gotten into her room and ripped up one of her books. She came running into the living room crying “Dylan is tearing my book up! He is the ripper!”

Whenever we have told people about this they usually tell us things like, “Buy a gate to keep him out of places.” We actually have done that we have several gates put in place; one at the bottom of the stairs so Dylan cannot go up the stairs for fear that he will have a seizure and fall down them and the other blocks him from the kitchen, so he can’t get into the kitchen to pull the stove over on himself; which he has actually done several times before we got the gate. The gate guarding the kitchen has been compromised several times. Dylan has fell on it shattering it twice, both times Terri has had to glue it back together, because the gate was specially ordered on line and we can’t find any like it at any of the stores. (To be continued.)

Daily News!!

By

Terri King

Dylan is home from school today because he is not feeling to good today. He didn’t sleep to well last night either and he had few seizures I believe brought by lack of sleep. I think he has a sinus infection a lot of sneezing and a runny nose. His awards ceremony went well yesterday.He received a medal, a certificate, and a new pair of tennis shoes he also got a cute t- shirt.

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Dylan was sitting in the living room yesterday after he got home from school. I forgot to move  the tissue box off the table. I walk into the living room to find tissues tore up all over the place. I couldn’t help but laugh at what he did because it was my fault for not moving them. He seemed to be happy with what he had done.

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Daily News!!

By

Terri King

Dylan went back to school today. He was in a pretty good mood this morning.He had one seizure before he left for school today it wasn’t a bad one and he had a quick recovery. All smile awards he had to get up and get his little pillow he likes to play with.Dylan has an award ceremony today at school for the virtual marathon. He is one of twenty-seven students to complete the marathon. I wish I could be there with him. I hope he has a wonderful time.

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